Čeština | Dansk | Deutsch | English | Español | Français | Italiano | Nederlands | Norsk | Polski | Português | Pусский | Suomi | Svenska | US
Euro Huntington's disease network [logo]
  -
Welcome

On this website you find information about the EHDN project (
objectives, organisation, people activities on executive committee, central coordination and language coordination, working groups, etc), sponsor of EHDN, participating study sites and ongoing studies (REGISTRY and PREDICT).
paragraph image
EHDN Maplink
Click on the map of Europe and select your country. There you find:
  • Language area coordination centres
  • HD associations
  • Study sites
Another way to navigate is to use the menu on the left. There you find Locations, Coordination Centres and HD Associations and their contact details. Please feel free to contact us by phone, email or fax.

REGISTRY Enrolled its 10,000th Participant

paragraph image
The REGISTRY study enrolled its 10,000th participant on Sept 18, 2012. This participant was enrolled by site Münster who will receive an iPAD for use in study assessments and other study-related activities. This is a fantastic achievement for the entire network and we would like to thank all sites, HD participants and their families who have contributed to this significant milestone. We are very grateful for your continued support.

Patients and Relatives ...

A contact form allows you to anonymously contact EHDN for advice and for help in getting in touch with experts on Huntington's Disease.

Physicians and Researchers ...

Apply for an EHDN Login! A login to the European HD Network allows you to join an existing or to build up a new study site, to access working areas or to join research working groups. Please contact the network in order to get a login.
 

Latest News of the Network

  • EHDN Newsletter - 22nd Edition 
  • Job offers: Data analysis/statistical modeling position, Paris, FR / Neurologist, Bern, Switzerland 
  • Announcement of the PRIDE-HD study start 
  • EHDN Fellowship Exchange Programme FEP 
  • REGISTRY Substudy Documents 
  • Recent publications 
  • EHDN2014 Plenary Meeting registration open! 
  • EHDNs Scientific Strategic Plan 
  • HDBuzz now available in several languages 
  • Standards of Care Guidelines published early 2012 
  • Journal of HD (JHD) 3rd issue July 2014 
  • EHDN would like to inform about the Enroll-HD Newsletter 
  • Video Postcards from Charles Sabine 
  • Survey for Young Adults 
  • EHDN Research Projects 
  • Note: HSGs COHORT study data available for EHDN members 
  • EHDN Motor Rating 2012 
  • EHDN Membership - Apply here! 
  • EHDN Constitution 
  • EHDN Newsletter Subscription 

Important Dates

19.09-21.09.2014
8th EHDN 2014 Plenary meeting, Barcelona, Spain
18.09.2014
Genetic Modifiers WG meeting, Barcelona, Spain
11.06.2014
Alive & Well, Challenging the HD Stereotype, 25th anniversary of the Scottish Huntington’s Association, Paisley, UK
application/pdfinvitation