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Euro Huntington's disease network [logo]
Communication - Contact Form -
Who can get in touch with the European HD Network?

If you are….
a patient suffering from HD?
at risk for HD?
a relative of an HD patient?

Do you want to….
contribute to a better understanding of HD?
make yourself available for studies in HD?
participate in drug trials in HD?

How to get in touch with the European HD Network?

Please fill in the contact form below to get in touch with the European HD Network. The Network will
  1. make further information about the network and its mission available to you and
  2. will - if you so wish - let you know the contact details of the study site(s) of the European HD Network closest to you. The staff at site will arrange for an appointment to meet you and to give you more information as requested in person and will
  3. invite you to join in a study called 'REGISTRY'
What is the study REGISTRY about?

The study REGISTRY will allow physicians and researchers to know who within the HD community would be willing to take part in clinical studies and how people at risk or people suffering from HD and their relatives are doing.
Important: it is not necessary that you disclose your name or any other personal details if you want to get in touch with the network - you are welcome to do so though if you like - the form below will sent your details in a secure, encrypted fashion.

I want to be anonymous - what do I have to do?
  • You have to get an anonymous e-mail address.
  • Send in your request by entering your newly acquired e-mail address.
  • Request information or request to be contacted for an appointment.
I want my contact details to be known by the Network office where they are treated as confidential information - what do I have to do?
  • Send in your request by entering your name and e-mail address.
  • Request information or request to be contacted for an appointment.
Contact Data
 I want to be anonymous? yes no
 Anonymous e-mail:
 Country:
 Name:  
 Email:
 Country:
Contact Reason
 Information about European HD Network: yes no
 I want to be contacted by European HD: yes no
 Comment: