Friday, September 9, 2005 Session I: Plenary (Weston Theatre, MCC)
09:00 | | Welcome and introduction
G. B. Landwehrmeyer & D. Craufurd
| 09:05 | | Activities of EHDN 9/2004 - 9/2005
G. B. Landwehrmeyer
| 09:15 | | Hot topics in HD: structured discussion.
- Targets for intervention: controversies on aggregation (G. Bates)
- Predicting clinical benefit from preclinical models (E. Signer & A. Tobin)
- Tracking the progression of HD: the search for biomarkers (S. Tabrizi)
- Are we ready for clinical trials in HD and which type of trials should we do right now? (C. Kosinski & G. B. Landwehrmeyer)
| 10:30 | | An European integrated project on spinocerebellar ataxias: EuroSCA
Stefano Di Donato | 10:45 | | Tea-/coffee break |
Session II: Break-out (meeting rooms MCC; see room assignment plan)
11:00 | | EHDN working group meeting sessions
including a finger food lunch served in the respective meeting rooms | 16:00 | | Tea-/coffee break | Session III: Plenary (Weston Theatre, MCC) Plenary
presentations by the lead facilitators of the working groups
Chair: Justo García de Yébenes
16:30 | | Behavioural Phenotype
(D. Craufurd & M Dose) | 16:40 | | Biomarkers (S. Tabrizi)
| 16:50 | | Brainbanking (J. García de Yébenes) | 17:00 | | Cognitive Phenotype (A-C. Bachoud-Lévi & J. Snowden) | 17:10 | | Genetic Modifiers (L. Jones & O. Bandmann)
| 17:20 | | Health Economics (P. McCrone & G.B. Landwehrmeyer)
| 17:30 | | Imaging (J. Kassubek & N. Leenders) | 17:40 | | Juvenile HD (O. Quarrell)
| 17:50 | | Motor Phenotype (R.A.C. Roos & P.H. Kraus)
| 18:00 | | Neuroprotective Rx (C. Kosinski & B. Kremer)
| 18:10 | | Quality of Life (C. Lohkamp)
| 18:20 | | Standard of Care (S. Simpson)
| 18:30 | | Symptomatic Rx (D. Ecker & J. Priller)
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Meeting Banquet/Formal Dinner (at Yang-Sing, 34 Princess Street, Manchester M1 4JY) | | Saturday, September 10, 2005 Session IV: Plenary (Weston Theatre, MCC) Chair: Raymund A.C. Roos
09:00 | | Presentation and discussion of the draft proposal of a constitution for EHDN, part I- General Introduction (R.A.C.Roos)
- Name, Mission and Principles (Articles 1; R.A.C.Roos)
- Organization (Article 2; D. Craufurd)
- Membership (Article 3; D. Craufurd)
- Executive Committee (Article 4; J. García de Yébenes)
- Standing EHDN Committees (Article 5; G. Bates)
- Administration (Article 6; G. Bernhard Landwehrmeyer)
- Meetings of Members (Article 7; S. di Donato)
| 10:30 | | Tea-/coffee
break | 11:00 | | Presentation and discussion of the draft proposal of a constitution for EHDN, part II
- EHDN Clinical Trials (Article 9; A. Rosser)
- EHDN Publication and Authorship Policy (Article 10; G. Bates & S. Dunnett)
- Ethical and Conflict-of-Interest Guidelines (Article 11; A. Rosser & S. di Donato)
- Amendments; Dissolution; Effective Date (Article 12; G. B. Landwehrmeyer)
- General Discussion and concluding remarks (R.A.C.Roos)
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Session V: Plenary (Weston Theatre MCC) Chair: Elena Cattaneo
12:00 | | Outlook: challenges for the Euro-HD Network between EHDN 2005 and EHDN 2006 G. B. Landwehrmeyer | 12:50 | | Invitation
to EHDN 2006 (Duinse Polders/Blankenberge, Belgium) and EHDN 2007
(Dresden, Germany held in conjunction with the 3rd WCHD) B. de Schepper & C. Lohkamp |
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| Closing remarks
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