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EHDN 2006 - Programme -
Friday 15th September

Session I (Plenary): Welcome and hot topics in HD: structured discussion

9:00   Welcome and introduction
    • On behalf of EHDN: Bernhard Landwehrmeyer
    • On behalf of EHA: Beatrice De Schepper
    • On behalf of High-Q: Allan Tobin & Ethan Signer
Hot topics in HD: structured discussion
Chair: Gillian Bates

9:15  
Identifying targets for intervetion: controversies on primary screens - Aleksey Kazantsev
9:30  
Genetic modifiers of HD: Is it worth looking? - Lesley Jones & Marcy MacDonald
9:45  
Extrastriatal pathology in HD: important for the clinical phenotype? - Maria Björkqvist & Asa Petersen
10:00  
Phenoconversion - a useful concept? - Ethan Signer & Allan Tobin
10:15  
Symptom oriented treatment in HD: worth the effort? - Daniel Ecker, Joseph Priller & Bernhard Landwehrmeyer

10:30  
Tea-/coffee break

Session II (Meeting rooms; see room assignment plan): working group meeting sessions

11:00  
EHDN working group meeting sessions
including a finger food lunch served in the respective meeting rooms
16:00  
Tea/coffee break

Session III (Plenary): Summaries working group meetings
Plenary presentations by the lead facilitators of the working groups
Chair: Justo García de Yébenes

16:30
 
Behavioural Phenotype  (David Craufurd & Matthias Dose)
16:40
 
Biomarkers  (Sarah Tabrizi)
16:50
 
Brainbanking  (Justo García de Yébenes)
17:00
 
Cognitive Phenotype  (Anne-Catherine Bachoud-Lévi)
17:10
 
Genetic Modifiers  (Lesley Jones)
17:20
 
Health Economics  (Paul McCrone & Bernhard Landwehrmeyer)
17:30
 
Imaging  (Jan Kassubek & Beatriz Gomez-Anson)
17:40
 
Juvenile HD  (Oliver Quarrell)
17:50
 
Motor Phenotype  (Ralf Reilmann)
18:00
 
Neuroprotective Rx  (Christoph Kosinski & Berry Kremer)
18:10
 
Quality of Life  (Christiane Lohkamp)
18:20
 
Standard of Care  (Sheila Simpson)
18:30
 
Symptomatic Rx  (Daniel Ecker & Josef Priller)

19:30

Dinner at Duinse Polders

Saturday 16th September

Session IV (Plenary): Perspectives on HD
Chair: David Craufurd
9:00  
Towards a systematic review of treatment options in HD - Sir Michael Rawlins
9:30  
A systematic search for disease-modifying therapies: CHDI - Janet Leeds
10:00  
Saint Vitus dance in Europe - Axel Karenberg

10:30  
Tea/coffee break

Session V (Plenary): Constitution of EHDN and Reports on Activities
Chair: Gillian Bates & Raymund Roos

11:00  
Report on the activities of EHDN 9/05 - 9/06 - Bernhard Landwehrmeyer
11:15  
A Constitution of the EHDN - Raymund Roos
11:45  
Presentation of members standing for EC and SRC Vote on the constitution and first slate of members of EC and SRC
12:15  
Outlook 2006-2007 and invitation to EHDN 2007/WCHD 2007 - Bernhard Landwehrmeyer

12:30  
Lunch

Session VIa (Plenary): Pathogenesis of HD
Chair: Stefano Di Donato

14:00  
Transcriptomics analysis in HD and its models: brain and peripheral tissues - Ruth Luthi-Carter
14:30  
Mechanisms underlying transcriptional dysregulation in HD - Elena Cattaneo
15:00  
Degrading huntingtin - David Rubinsztein
15:30  
Disease pathways in HD: a collaborative effort - Christian Neri & Andreas Kremer

16:00  
Tea/coffee break

Session VIb (Plenary): Developments in Clinical Sciences

Chair: Anne Rosser
 
16:30  
Behavioral changes in HD and HD rodent models – Jenny Morton
16:50  
Behavioral assessments in HD: towards improving the tools - David Craufurd
17:10  
Motor assessments: new rater training, new read-outs – Ralf Reilmann
17:30  
Prediagnostic stages of HD: recent findings – Jane Paulsen
17:50  
Ongoing clinical studies and clinical studies in the making – Ira Shoulson, Anthony Clarke, Sandrine Humbert, Bernhard Landwehrmeyer
18:25  
Closing remarks
18:30  
End of  Conference

19:30  
Reception at Pier
20:00  
Formal Dinner at Pier

Sunday 17th September

09:30 Excursion to Brugge


 

Programme of the EHA Meeting

Wednesday 13th September

10.00 Opening of registration desk
12:00
Lunch
13.30 Agenda
  • Report from the board
  • Report from the different member associations
  • Co-operation EHA an EHDN
  • Appointment of the EHA-representatives for the Executive Committee of the EHDN
  • Planning
  • Next European Meeting
  • Other issues
17.30 Diner

Thursday 14th September

9:00 Welcome
Beatrice de Schepper, President EHA
9:15 Treatment of Huntington's Disease
Prof. Patrick Cras, Neurologist
10:00 Coffee break
10:30 The speech pathologist and Huntington's Disease.
Tanja Beeckman - Katja Batens, Speechtherapists
11:30 Lay organisations and professionals: love and marriage?
Dr. Dirk Liessens, Psychiatrist
12:30 Lunch
14:00 Predictive, prenatal and pre-impalantion genetic testing in Europe, present and future
Prof. Gerry Evers-Kiebooms, Dr. Marleen Decruyenaere
15:00 Coffee break
15:30 A mutual obligation in the care of patients with HD
Prof. René Dom, Neurologist
16:15 Playing music about HD and Woody Guthrie
Steve Smith
17:30 Dinner
19:00 Greetings on the occasion
Minister Inge Vervotte, Flemish Minister for Welfare, Public Health and Family
20:00 Reception