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EHDN2018 DISEASE NETWORK PROJECTS LOGIN
 
 
  
Annual Meetings of the European HD Network - EHDN 2008 - Preliminary EHA Programme -
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--->Coordination
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--->Barcelona - Merced
--->Bilbao
--->Burgos
--->Canaries
--->Granada
--->Fuenlabrada
--->[+]Madrid-BTCIEN
--->Madrid - Clínico
--->Madrid - FJD
--->Madrid - RyC
--->Murcia
--->Oviedo
--->Palma de Mallorca
--->Pamplona
--->Santiago
--->Sevilla
--->Sevilla-HUVRocio
--->Sevilla-St-Ana
--->Valencia
--->Zaragoza
--->[-]Sweden
--->Coordination
--->HD Associations
--->Åland
--->Goteborg
--->Lund
--->Stockholm-Ersta
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--->Umea
--->Uppsala
--->[+]Switzerland
--->[-]U.K.
--->Coordination
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--->Links
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--->Standard of Care
--->Aberdeen
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--->Exeter
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--->Forth Valley
--->Glasgow
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--->Hull
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--->Launceston
--->Leeds
--->Leicester
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--->London - Guy's Hospital
--->London - Hammersmith
--->London - NHNN
--->London - Royal Hospital
--->London - St. George´s
--->Manchester
--->Newcastle-Upon-Tyne
--->[+]Northampton
--->Nottingham
--->Oxford
--->[+]Plymouth
--->Poole
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--->Reading
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--->Southampton
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--->Swindon
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[-]Working Groups
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[-]Events
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[+]Communication
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Saturday, September 6th, 2008

14:00-16:00  EHA Business Meeting

Sunday, September 7th, 2008

9:00-9:30  Welcome and introduction
Beatrice de Schepper, President of the EHA, Belgium
Joaquim Ferreira, Hospital Santa María, Lisbon, Portugal
Ursula Anna Kleibrink, Public Relation Management, Portuguese Huntington Association, Portugal
9:30-10:15  Update on the pathogenesis of Huntington's disease and treatment strategies
Wim Vandenberghe, K.U. Leuven, Belgium
10:30-11:15  The burden of living with uncertainty and genetic testing for
HD
Gerry Evers-Kiebooms, Centrum Mensekijke Erfelijkheid, K.U. Leuven, Belgium
11:15-11:45  Tea-/Coffee Break
11:45-12:15  A comprehensive genetic view
D. Jorge Sequeiros, IMBC, UniGene, CGPP, Porto, Portugal
12:15-14:00 Lunch
14:00-14:45   Living with HD
Cristina Costa, Hospital Fernando Fonseca Amadora, Lisbon, Portugal
 
14:45:15:30   Intensive rehabilitation therapy in HD patients in Italy
Paola Zinzi, Associazione Italiana Corea de Huntington, Roma, Italy
15:30-16:00  Tea-/Coffee Break
16:00-16:45   HORIZONTE Project
Irene Mendes, Portugal
Ursula Anna Kleibrink, Portugal
16:00-16:45   Relaxation of the HD patients trought touching
Christian Boch, Huntington's Disease Center, Bochum, Germany
19:30
  EHA Dinner

Monday, September 8th, 2008

9:00-9:45  Update on research
G. Bernhard Landwehrmeyer, University of Ulm, EHDN, Germany
9:45-10:30  Presentation of the 2010 EHA Meeting in Prague
Jiri Hruda, President Spolecnost pro Pomoc pri Huntingtonove Chorobe, Czech Repulbic
Lunch and End of Meeting
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