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European HD Network Plenary Meeting - EHDN 2010 - Preliminary EHA Programme -
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Saturday, September 4th, 2010

14:00-16:00   EHA Business Meeting
  1. Report from the Board:
    • President
    • Vice-President
    • Secretary
    • Treasurer
    • EHA's EHDN Representative
  2. Report From the Different Member Associations
  3. Appointment of the EHA Representative for the Executive Committee of EHDN
  4. Candidates to the Board
  5. Voting
  6. Planning
  7. Next European Meeting in 2012
  8. Other Issues

Sunday, September 5th, 2010

09:00-09:30   Welcome and Introduction
Beatrice de Schepper, President of the EHA, Belgium
Jiri Hruda, Czech Huntington Association, Czech Republic
 
09:30-10:00   What has Gregor Mendel to do with Huntington's Disease
Christiane Lohkamp, Germany
 
10:00-10:30   Norwegian and Swedish Juvenile Projects
Carina Hvalstedt, Sweden
 
10:30-11:15   Swallowing
Liesbet Desmet, Belgium
 
11:15-11:25   Children Choir
 
11:25-11:45   Tea/Coffee Break
 
11:45-12:30   Aggression and its Medication in HD
Jan Vevera, Czech Republic
 
12:30-14:00   Lunch
 
14:00-14:45   Taking Care of Caregivers
Tereza Uhrova, Czech Republic
 
14:45-15:30   Standards of Care
Sheila Simpson, UK
 
15:30-16:00   Tea/Coffee Break
 
16:00-16:45   Zero Line to Help HD Patients and Families
Andrea Boogaerts, Belgium
 
16:00-16:45   PGD and Exclusion Testing
Panel Discussion of Genetic Testing
 Inge Liebaers, Belgium
 
19:30   EHA Dinner


Monday, September 6th, 2010

09:00-09:45   Update on Research
G. Bernhard Landwehrmeyer, Germany
 
09:45-10:30   The Situation of Patient's Organisations in the Czech Republic
Jana Petrenko, Czech Republic
 
10:30-11:15   Stem Cell Research
N.N.
 
Lunch and End of Meeting
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