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European HD Network Plenary Meeting - EHDN 2010 - Preliminary Programme -
Thursday, September 2nd, 2010

16:00-21:00   Registration Desk

Friday, September 3rd, 2010

Plenary Session I: Hot Topics

08:30-08:40   Welcome and Introduction
G. Bernhard Landwehrmeyer (Ulm, Germany),
Jan Roth (Prague, Czech Republic),
Jiri Hruda (Pardubice, Czech Republic)
Hot Topics
Chair: Tiago Outeiro (Lisbon, Portugal)
08:45-09:15   Are There HD Patients With < 36 CAG Repeats?
  • "Yes, There Are"
    Josef Jankovic (Houston, USA)
  • "No, There Are Not"
    Arvid Heiberg (Oslo, Norway)
  • 09:15-09:45   Are We Ready to Measure a Disease-Modification Effect?
    • "Yes, We Are"
      Karl Kieburtz (Rochester, USA)
  • "No, We Are Not"
    Dan van Kammen (Princeton, USA)
  • 09:45-10:15   Home Care Versus Institutionalisation
    • "Home Care Preferable"
      Sheila Simpson (Aberdeen, UK)
  • "Institutionalisation Preferable"
    Stephen Smith (Norfolk, UK)
  • 10:15-10:45   Genetic Counselling: What to Tell and When?
    Marina Frontali (Torre Gaia, Italy)
    10:45-11:15   Tea/Coffee Break
    Plenary Session II: Working Group Presentations
    Chair: G. Bernhard Landwehrmeyer (Ulm, Germany)
    11:15-12:45   Presentation From Selected Working Groups
    • Advanced HD
      Sophie Duport (London, UK), Nicholas Stoy (London, UK)
    • Biological Modifiers and Neuroprotective
      Gillian Bates (London, UK), Christian Néri (Paris, France)
    • Environmental Modifiers
      Martin Delatycki (Melbourne, Australia), Monica Busse (Cardiff, UK)
    • Neuroprotective Therapy
      Joaquim Ferreira (Lisbon, Portugal),  Ralf Reilmann (Münster, Germany)
    • Standard of Care
      Sheila Simpson (Aberdeen, UK)
    • Youth HD
      Michael Orth (Ulm, Germany), Ruth Sands (Liverpool, UK)
    12:45-14:00   Buffet Style Lunch
    12:50-13:50   Poster Viewing & Guided Poster Tours
    Chaired by Emilio di Maria (Genova, Italy),
    Jean-Marc Burgunder (Bern, Switzerland)
    Short Communications I:
    Chair: Pierre Krystkowiak (Amiens, France)
    14:00-14:15   Overview of the FuRST-pHD Program
    Ken Evans (Toronto, Canada)
    14:15-14:30   Results of the New Item Development Efforts
    Hugh Rickards (Birmingham, UK)
    14:30-14:45   Next Steps for FuRST and Beyond
    Mark Guttmann (Markham, Canada)
    14:45-15:00   Antisense Oligonucleotides Targeting Single Nucleotide Polymorphisms in Huntingtin: Allele-Specific Silencing of Mutant Huntingtin
    Jeff Carroll (Vancouver, Canada)

    Session I: Presentation of Endorsed Projects
    Chairs: Anne Rosser (Cardiff, UK) and Lesley Jones (Cardiff, UK)
    15:00-15:15   Parameter Optimisation for Diffusion Tensor Imaging in Huntington's Disease
    Hans-Peter Müller (Ulm, Germany)
    15:15-15:30   The Use of Depression Rating Scales in Patients with HD
    Jenny De Souza (Birmingham, UK)
    15:30-15:45   Search for Genetic Modifiers in HD: Exploring the Foxo Network
    Christian Néri (Paris, France)
    15:45-16:00   Single Centre (Pilot) Study for Deep Brain Stimulation (DBS) of the Globus Pallidus in Huntington's Disease
    Jan Vesper (Düsseldorf, Germany)
    16:00-16:15   Functional Rating Scale for preHD
    Aileen Ho (Reading, UK)
    16:15-16:30   Disease Modelling
    John Warner (Princeton, USA)
    16:30-17:00   Tea/Coffee Break
    Plenary Session III: Keynote Presentation
    Chair: Joaquim Ferreira (Lisbon, Portugal)
    17:00-18:00   Role of Networks of Biological and Clinical Data for Clinical Research
    Bin Zhang, Sage Bionetworks (Seattle, USA),

    Plenary Session IV: Business Meeting

    18:00-18:45   EHDN Update
    EC elections, SBAC elections
    Structure of EHDN
    18:45-19:00PLoS HD Currents
    Mark Patterson (Cambridge, UK)
    19:00-21:00   Poster Viewing with Bar and Finger Food
    Sponsored by CHDI Foundation and PLoS
    Dinner on your own

    Programme Saturday and Sunday
    Please note:
    Since the meeting starts on Friday morning at 08.30, we highly recommend that you plan to arrive on Thursday, September 2nd, 2010.

    Meals and refreshments will be provided during EHDN 2010 (i.e. from Friday until midday on Sunday; Sunday lunch will not be included) free of charge.