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Sunday, September 16th, 2012
10:00-12:00 |
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EHA Business meeting
Bea de Schepper, Belgium |
- Report from the Board:
- President
- Vice-President
- Secretary
- Treasurer
- EHA's EHDN Representative
- Reports from the different member associations.
We kindly ask to make a short report about the activities and events of your association since last business meeting and to send it prior to the meeting.
- Appointment of the EHA representative for the Executive Committee of EHDN
- Candidates to the Board
- Voting
- Planning
- Next European Meeting in 2014
- Other Issues
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12:30-14:00 |
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Lunch |
Registration - is closed! | | Sunday, September 16th, 2012
14:00-14:10 |
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Welcome
Beatrice de Schepper (EHA) Sven-Erik Svensson (RHS) Introduction
Carina Hvalstedt, Sweden and Astri Arnesen, Norway
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14:10-15:00 |
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A summary of the scientific part of EHDN Sessions
Ed Wild, UK 15 min Questions to Ed
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15:00-15:30 |
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How to cope growing up in an HD family
Matt Ellison, UK (HDYO HD Youth)
10 min Questions to Matt
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15:30-15:55 |
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Coffee Break
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15:55-16:35 |
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"A Huntington relationship" - falling in love and staying in love Marjon Mol (Author of "Do we want to know? Living with HD") 10 min Questions to Marjon |
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16:35-17:25 |
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Juvenile HD Oliver Quarrell, UK 10 min Questions to Oliver |
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17:25-18:00 |
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Movie from the Swedish family camp and the HD feel good groups (max 20 min all together)
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20:00 |
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EHA Good bye Dinner for all participants
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Monday, September 17th, 2012
09:15-10:15 |
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Communication challenges and the use of Talking Mats for people with HD
Ulrika Ferm, speech therapist 15 min Questions to Ulrika |
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10:15-10:30 |
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Presentation of the Norwegian HD network
XXXXX
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10:30-11:00 |
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Coffee Break |
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11:00-12:30 |
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Update on research – What are the prospects?
Bernhard Landwehrmeyer, Germany
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12:30 |
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Lunch and goodbye for now! |
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