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Euro Huntington's disease network [logo]
EHA Programme -
Sunday, September 16th, 2012

10:00-12:00   EHA Business meeting
Bea de Schepper, Belgium
  1. Report from the Board:
    • President
    • Vice-President
    • Secretary
    • Treasurer
    • EHA's EHDN Representative
  2. Reports from the different member associations.
    We kindly ask to make a short report about the activities and events of your association since last business meeting and to send it prior to the meeting.
  3. Appointment of the EHA representative for the Executive Committee of EHDN
  4. Candidates to the Board
  5. Voting
  6. Planning
  7. Next European Meeting in 2014
  8. Other Issues
 
12:30-14:00   Lunch

Registration - is closed!

 
Sunday, September 16th, 2012

14:00-14:10   Welcome
Beatrice de Schepper (EHA)
Sven-Erik Svensson (RHS)

Introduction
Carina Hvalstedt, Sweden and Astri Arnesen, Norway
 
14:10-15:00   A summary of the scientific part of EHDN Sessions
Ed Wild, UK
15 min Questions to Ed
 
15:00-15:30   How to cope growing up in an HD family
Matt Ellison, UK (HDYO HD Youth)
10 min Questions to Matt
 
15:30-15:55   Coffee Break
 
15:55-16:35   "A Huntington relationship" - falling in love and staying in love
Marjon Mol (Author of "Do we want to know? Living with HD")
10 min Questions to Marjon
 
16:35-17:25   Juvenile HD
Oliver Quarrell, UK
10 min Questions to Oliver
 
17:25-18:00   Movie from the Swedish family camp and the HD feel good groups (max 20 min all together)
 
20:00   EHA Good bye Dinner for all participants
 
 
Monday, September 17th, 2012

09:15-10:15   Communication challenges and the use of Talking Mats for people with HD
Ulrika Ferm, speech therapist
15 min Questions to Ulrika
 
10:15-10:30   Presentation of the Norwegian HD network
XXXXX
 
10:30-11:00   Coffee Break
 
11:00-12:30   Update on research – What are the prospects?
Bernhard Landwehrmeyer, Germany
 
12:30   Lunch and goodbye for now!