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Euro Huntington's disease network [logo]
Programme III -
 
Sunday, September 21st, 2014
Breakfast teaching courses
 
08:15-09:30   Services Provided for Patients and Their Families/
Basic Principles of Care in the Nursing Home
Saskia Demeulenaere (Heist-op-den-Berg, Belgium)/
Wilco Achterberg (Leiden, The Netherlands)
 
08:15-09:30   Organising and managing an efficient Enroll-HD clinic –
How to get all the work done and manage a busy clinic.
Joe Giuliano (Princeton, USA)
 
08:15-09:30   Genetic counselling
Rhona Macleod (Manchester, UK) and Nayana Lahiri (London, UK)
 
08:15-09:30   Dysphagia in HD: the practice of investigation and treatment
Anne-Wil Heemskerk (Leiden, The Netherlands) and Falk Schradt (Ulm, Germany)
 

Plenary Session VI:
'Gene and Protein Lowering Strategies'

Chair: Beverly Davidson (Iowa, USA)
Co-Chair: Doug Macdonald (Los Angeles, USA)
 
10:00-10:20   Basic understanding: the role of abnormal HTT accumulation
Leslie Thompson (Irvine, USA)
 
10:20-10:40   Pharmacodynamic and proximal biomarkers for modulation of Huntingtin levels: preclinical studies for translation to the clinic"
Doug Macdonald (Los Angeles, USA)
 
10:40-11:00   The steps into clinical trials
Jang-Ho Cha (North Wales, USA)
 
11:00-11:30   Panel discussion
 
11:30-12:00   Tea/Coffee Break
 
Keynote Session II:
'HD families in HD Research'

Chair: Jean-Marc Burgunder (Bern, Switzland)
Co-Chair: Astri Arnesen (Kristiansand, Norway)
 
12:00-12:45   Coping with Waiting: HD families between high hopes and day-to-day demands
G. Bernhard Landwehrmeyer (Ulm, Germany)
 
Roundup III and Poster Awards
 
12:45-13:15   Poster Awards and Lessons of EHDN2014
 

Programme EHDN 2014