Saturday, September 15th, 2018 Breakfast teaching courses
| Note: There will be a "Walk for HD" - at the same time. If you wish to join the Walk for HD, you can not join a Breakfast teaching course. |
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| 08:00-09:15 |
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Career in Research for Young Professionals
Chiara Scaramuzzino (Grenoble, France), Emma Yhnell (Cardiff, UK), Thomas Massey (Cardiff, UK), Fionnuala Margreiter (EHDN)
Room: 1.85-86 (Level 1) |
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| 08:00-09:15 | |
HD Clinical Trial Participation: Maximize your site's chances of involvement
Jenny Townhill (Cardiff, UK)
Room: Hall N1 (Level 1) |
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| 08:00-09:15 |
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Overview of Different Established Therapies
- Dysphagia, Language and Communication
Angela Nuzzi (Siena, Italy) and Falk Schradt (Ulm, Germany)
- Behavior in a Residential Setting
Welmoed Liefrinck (Katwijk, The Netherlands)
Room: Hall F2 (Level 0) |
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| 08:00-09:15 |
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Guilt and Huntington's Disease
Marina Pavlou and Andri Anastasiou (Cyprus)
 slides Pavlou
Room: Hall M (Level 1) |
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| 08:00-09:15 |
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Genetic Counselling and Narrative Practices: A Model of Support for Individuals impacted by Huntington’s Disease
Rhona Macleod (Manchester, UK), Mariangels Ferrer Duch (Bowdon, UK)
Room: Hall N2 (Level 1) |
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Plenary Session III:
'Keeping Brain Cells Functioning – Can we slow Disease Progression'
Room: Hall E
Chair: Jan Frich (Oslo, Norway)
Co-Chair: Hoa Huu Phuc Nguyen (Tübingen, Germany) |
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| 09:30-09:50 |
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Environmental Modulation of Motor, Cognitive and other Deficits in Rodent Models of HD and other Neurodegenerative Diseases
Stephan von Hörsten (Erlangen, Germany) |
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| 09:50-10:10 |
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Brain training in Huntington's disease
Marina Papoutsi (London, UK)
slides Papoutsi |
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| 10:10-10:30 |
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Prospects for exercise and physical activity in HD – what next?
Monica Busse (Cardiff, UK)
slides Busse |
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| 10:30-11:00 |
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Panel Discussion |
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| 11:00-11:30 |
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Tea/Coffee Break |
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Parallel Session II:
Parallel - Science Session:
'EHDN Working Groups'
Room: Hall E
Chair: Jean-Marc Burgunder (Bern, Switzerland)
Co-Chair: Michael Orth (Ulm, Germany) |
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| 11:30-11:40 |
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EHDN Think-Tank Activities
Michael Orth (Ulm, Germany) |
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| 11:40-11:50 |
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Juvenile Onset Working Group
Oliver Quarrell (Sheffield, UK)
slides Quarrell |
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| 11:50-12:00 |
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Cognitive Working Group
Jaime Kulisevsky (Barcelona, Spain)
slides Kulisevsky |
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| 12:00-12:10 |
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Physiotherapy Working Group
Katy Hamana (Cardiff, UK)
slides Hamana |
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| 12:10-12:20 |
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Young Adults Working Group
Catherine Martin (Glasgow, UK)
slides Martin |
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| 12:20-12:30 |
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Driving Task Force
Rients Huitema (Groningen, The Netherlands)
slides Huitema |
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Parallel - Clinical Practice Session:
'Psychological and psychiatric session'
Room: Hall F2
Chair: Hugh Rickards (Birmingham, UK)
Co-Chair: Andrea Higgins (Dublin, Ireland) |
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| 11:30-11:50 |
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Treatment of Irritability in HD
Karen Anderson (Washington D.C., USA)
slides Anderson |
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| 11:50-12:20 |
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Psychological Therapies in HD
Andrea Higgins (Dublin, Ireland) |
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| 12:20-12:30 |
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Discussion |
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Poster Viewing
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| 12:30-14:00 |
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Poster Viewing
Room: Foyer |
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| 12:30-14:00 |
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Buffet Style Lunch |
| | Plenary Session IV:
'Living with HD'
Room: Hall E Chair: G. Bernhard Landwehrmeyer (Ulm, Germany)
Co-Chair: Astri Arnesen (EHA, Norway) |
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| 14:00-14:30 |
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How to Cope with HD – dealing with symptoms in your everyday life
Mathias Falk, Sweden | | |
| 14:30-15:00 | |
Growing up in an HD family – Taking on Responsibilities
Victoria Emerson, UK | | |
| 15:00-15:30 | |
Having Children at Risk – Being a Parent
Birgitta Falk, Sweden | | |
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| 15:30-16:00 |
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Tea/Coffee Break |
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Parallel Session III:
Short Communications II
Room: Hall E
| Chair: Nayana Lahiri (London, UK) and Silvia Gines (Barcelona, Spain) |
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| 16:00-17:00 |
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- BRCA Mutations are associated with higher CAG Numbers found in various Polyglutamine Disorders
Elisabeth Singer (Tübingen, Germany)
slides Singer -
Retinal Layers’ Thickness as a Potential Biomarker of Huntington's Disease
Svetlana Kopishinskaya (Nizhny Novgorod, Russia)
slides Kopishinskaya -
Huntington’s Disease Health-Related Quality of Life Questionnaire (HDQoL): Further Validation
Aileen Ho (Reading, UK)
slides Ho -
CAG-Dependent Huntington's Disease Patterns over Decades: The Track-HD and Track-On Studies
Doug Langbehn (Iowa, USA)
slides Langbehn -
Neuronal Correlates and Clinical Predictors for Dysphagia in Huntington’s Disease
Beate Schumann (Aachen, Germany)
slides Schumann
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Workshop
Room: Hall F2
Plenary Session V:
'EHDN Business Meeting'
Room: Hall E
| Chairs: Jean-Marc Burgunder (Bern, Switzerland) and Anne Rosser (Cardiff, UK) |
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| 17:00-17:45 |
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Update since the last plenary meeting
EC elections, SBAC elections
EHDN Strategic Plan
slides Burgunder
slides Rosser |
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Debate: 'Whose Information is it anyway?'
Room: Hall E
| Chair: Bernhard Landwehrmeyer (Ulm, Germany) |
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| 17:45-18:30 |
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Debate about Confidentiality in a Huntington’s Case
slides Landwehrmeyer |
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"Viennese Heuriger"
Evening Get Together with an Austrian Style Buffet
| 19:00-23:00 |
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Evening Get Together, Networking at the Conference Venue
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| 19:00-22:00 |
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Movie Night
19:00 Absolute Beginners
20:00 Dancing at the Vatican
21:00 The unwanted inheritance
watch here (pay per view)
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