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EHDN2018 DISEASE NETWORK PROJECTS LOGIN
 
 
  
Programme Saturday -
--->News
[-]The Project
--->Sponsor
--->[-]Executive Committee
--->Arnesen
--->Blumenstein
--->Humbert
--->Jones
--->Kulisevsky
--->Mariotti
--->Muehlbaeck
--->Reilmann
--->Roos
--->Rosser
--->Weydt
--->Capper-Loup
--->Feihle
--->Levey
--->McLean
--->Public Documents
--->[+]Writing Committee Strategic ...
--->[+]Scientific and Bioethics Advis...
--->Central Coordination
--->Language Coordination
--->Fellowship Programme
--->[+]Constitution
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[-]Locations
--->[+]Austria
--->[+]Belgium
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--->[+]Coordination
--->[-]HD Associations
--->Brno
--->Ostrava
--->Olomouc
--->Prague
--->[+]Denmark
--->[-]Finland
--->Coordination
--->HD Associations
--->Åland
--->Helsinki-HUH
--->Helsinki-Vaestoliitto
--->Documents
--->Kuopio
--->Oulu
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--->Turku-TUH
--->[-]France
--->Coordination
--->HD Associations
--->Amiens
--->Bordeaux
--->[+]Clermont-Ferrand
--->Lille
--->[+]Rouen
--->Strasbourg
--->[+]Documents
--->[-]Germany
--->Coordination
--->HD Associations
--->Standard of Care
--->Aachen
--->Berlin
--->Bochum
--->Bonn
--->Dresden
--->Dinslaken
--->Düsseldorf
--->Erlangen
--->Freiburg
--->Hamburg
--->Hannover
--->HH-Heiligenhafen
--->Itzehoe
--->Marburg-Uni
--->[+]Lübeck
--->Marburg-KPP
--->Mainz
--->Munich
--->München-LMU
--->Münster
--->Rostock
--->Taufkirchen
--->Ulm
--->[+]Würzburg
--->[+]Ireland
--->[-]Italy
--->Coordination
--->HD Associations
--->Bari
--->Bologna
--->Brescia
--->Cagliari
--->Florence
--->Genoa
--->Milan
--->Napels
--->Pisa
--->Pozzilli
--->Rome
--->Rome-LIRH
--->Rome-Sant'Andrea
--->[-]Netherlands
--->Coordination
--->HD Associations
--->Enschede
--->Groningen
--->Leiden
--->[-]Maastricht
--->[+]Documents
--->Nijmegen
--->[-]Norway
--->Coordination
--->HD Associations
--->Bergen
--->Oslo
--->Trondheim
--->[-]Poland
--->Coordination
--->[-]HD Association
--->Gdansk
--->Katowice
--->[+]Krakow
--->Poznan
--->Warsaw - MU
--->Warsaw - IPiN
--->[+]Portugal
--->[-]Russia
--->[+]Coordination
--->[+]HD Associations
--->[+]Kazan
--->[+]Moscow
--->[-]Nizhny Novgorod
--->[+]Ufa
--->[+]Voronezh
--->[-]Spain
--->Coordination
--->HD Associations
--->Alicante
--->Badajoz
--->Barcelona - Bellvitge
--->Barcelona - Clinic i Provincia...
--->Barcelona - Mutua de Terra...
--->Barcelona - Santa Creu i Sa...
--->Barcelona - Merced
--->Bilbao
--->Burgos
--->Canaries
--->Granada
--->Fuenlabrada
--->[+]Madrid-BTCIEN
--->Madrid - Clínico
--->Madrid - FJD
--->Madrid - RyC
--->Murcia
--->Oviedo
--->Palma de Mallorca
--->Pamplona
--->Santiago
--->Sevilla
--->Sevilla-HUVRocio
--->Sevilla-St-Ana
--->Valencia
--->Zaragoza
--->[+]Sweden
--->[+]Switzerland
--->[-]U.K.
--->Coordination
--->HD Associations
--->Links
--->[-]UKHDN
--->Member Sites
--->Activities
--->News
--->Meetings
--->Research prog
--->Documents
--->Standard of Care
--->Aberdeen
--->[+]Ayr
--->Belfast
--->Birmingham
--->[+]Blandford Forum
--->Bristol
--->Cambridge
--->Cardiff
--->Dundee
--->Edinburgh
--->Exeter
--->Fife
--->Forth Valley
--->Glasgow
--->Gloucester
--->Hull
--->Inverness
--->Launceston
--->Leeds
--->Leicester
--->Liverpool
--->London - Guy's Hospital
--->London - Hammersmith
--->London - NHNN
--->London - Royal Hospital
--->London - St. George´s
--->Manchester
--->Newcastle-Upon-Tyne
--->[+]Northampton
--->Nottingham
--->Oxford
--->[+]Plymouth
--->Poole
--->Preston
--->Reading
--->[+]Sheffield
--->Southampton
--->Stoke-on-Trent
--->Swindon
--->Wrexham
--->[+]Outside Europe
[-]Working Groups
--->[+]Advanced HD
--->[+]Behavioural Phenotype
--->[+]Biological Modifiers
--->[-]Biomarkers
--->[+]Dates
--->[+]Meetings
--->[+]Brain and Tissue Banking
--->[+]Cognitive Phenotype
--->[+]Environmental Modifiers
--->[+]Functional Ability
--->[-]Genetic Testing
--->[+]Dates
--->[-]Meetings
--->Meeting 2008/05
--->Meeting 2008/09
--->Meeting 2009/06
--->Meeting 2010/05
--->Meeting 2011/03
--->Meeting 2012
--->Meeting 2014/01
--->Meeting 2014/09
--->Meeting 2016/09
--->Conference Call 2017/05
--->Meeting 2018/09
--->[+]Genetic Modifiers
--->[+]Health Economics
--->[+]Heated TF
--->[-]Imaging
--->[+]Dates
--->[-]Meetings
--->Meeting 2007
--->Meeting 2008/09
--->Meeting 2009
--->Meeting 2012
--->Meeting 2014
--->Meeting 2016
--->[+]Juvenile HD
--->[-]Motor Phenotype
--->[-]Dates
--->[+]Meetings
--->[+]Neuroprotective Therapy
--->[+]Physiotherapy
--->[+]Quality of Life
--->[-]Standard of Care
--->[+]Dates
--->[-]Meetings
--->Meeting 2005/03
--->Meeting 2005/09
--->Meeting 2006/09
--->Meeting 2009
--->Meeting 2011
--->[-]Dieticians
--->[+]SALT
--->[+]Dental care
--->[-]Occupational
--->[+]Surgical Approaches
--->[-]Symptomatic Research
--->[+]Dates
--->[-]Meetings
--->Meeting 2005/07
--->Meeting 2005/09
--->Meeting 2006/09
--->Meeting 2008/04
--->Meeting 2009
--->[+]Young Adults
[-]Events
--->[-]EHDN 2018
--->Announcement
--->Announcement 2020
--->Introduction
--->Programme Fri
--->Programme Sat
--->Programme Sun
--->Additional Meetings
--->Registration
--->Photos
--->Sponsoring/Partners
--->CME points
--->HD on the Move
--->Travel Information
--->Hotel booking
--->Flight booking
--->ACV Security Checks
--->About Vienna
--->Useful information
--->Contacts
--->Reimbursement
--->[+]Abstract Submission
--->Documents
--->Feedback
--->[-]EHDN 2016
--->Announcement
--->Introduction
--->Registration
--->Programme Fri
--->Programme Sat
--->Programme Sun
--->Additional Meetings
--->Floor plan
--->[-]Overduin Registration
--->Register
--->CME points
--->Sponsoring
--->Travel Information
--->Hotel booking
--->Social activities
--->Reimbursement
--->[+]Abstract Submission
--->Contacts
--->Documents
--->Feedback
--->EHDN 2014
--->[-]EHDN 2012
--->Introduction
--->Announcement
--->Programme Fri
--->Programme Sat
--->Programme Sun
--->Additional Meetings
--->Important Dates
--->Registration
--->[+]Travel & Accommodation
--->[+]EHA Registration
--->EHA Programme
--->Reception Dinner
--->About Stockholm
--->[+]Abstract Submission
--->Reimbursement
--->[-]Documents
--->Handouts
--->Presentations
--->[-]Posters
--->Pathogenic mechanisms
--->Animal models
--->Choreatic disorders - no...
--->Genetic modifiers
--->Wet Biomarkers
--->Imaging
--->Clin characteristics
--->Clin char-motor
--->Clin char-cognitive
--->Clin char - behaviour
--->Clin char-other
--->Clinical studies
--->Genetic testing
--->Clinical care
--->Experimental Rx
--->Clinical Rx
--->Non-scientific
--->Contacts
--->Feedback & Evaluation
--->[-]EHDN 2010
--->Introduction
--->Programme I
--->Programme II
--->Additional Meetings
--->Registration
--->EHA Programme
--->[+]EHA Registration
--->Plenary Dinner
--->Social Programme
--->Important Dates
--->[-]Abstract Submission
--->Reimbursement
--->Hotel Booking
--->[+]Travel and Location
--->[+]About Prague
--->Documents
--->Committees
--->Contact
--->Feedback & Evaluation
--->[-]EHDN 2008
--->Programme
--->Additional Meetings
--->EHA Programme
--->Social Programme
--->Kids Programme
--->Important Dates
--->Voting
--->Reimbursement
--->[+]Registration
--->[+]Abstract Submission
--->Evaluation & Feedback
--->[+]Travel and Location
--->[+]About Lisbon
--->[+]Documents
--->Committees
--->Contact
--->[-]EHDN 2007
--->Final Programme
--->Additional Meetings
--->Meeting Venue
--->[-]About Dresden
--->Cultural Entertainment
--->Sightseeing
--->Food & Drink
--->[+]EHDN 2006
--->[-]EHDN 2005
--->Final Programme
--->Plenary Dinner
--->Registration
--->Working Groups
--->Meeting Venue
--->Manchester
--->Evaluation & Feedback
--->[-]EHDN 2004
--->Introduction
--->Final Programme
[-]Communication
--->Contact Form
--->Chat Rooms
--->Mailinglists - public
--->Newsletter
--->Job Offers
application/pdfEHDN2018-Program 
Saturday, September 15th, 2018
Breakfast teaching courses
Note: There will be a "Walk for HD" - at the same time. If you wish to join the Walk for HD, you can not join a Breakfast teaching course.
 
08:00-09:15   Career in Research for Young Professionals
Chiara Scaramuzzino (Grenoble, France), Emma Yhnell (Cardiff, UK), Thomas Massey (Cardiff, UK), Fionnuala Margreiter (EHDN)
Room: 1.85-86 (Level 1)
 
08:00-09:15   HD Clinical Trial Participation: Maximize your site's chances of involvement
Jenny Townhill (Cardiff, UK)
Room: Hall N1 (Level 1)
 
08:00-09:15   Overview of Different Established Therapies
- Dysphagia, Language and Communication
Angela Nuzzi (Siena, Italy) and Falk Schradt (Ulm, Germany)
- Behavior in a Residential Setting
Welmoed Liefrinck (Katwijk, The Netherlands)
Room: Hall F2 (Level 0)
 
08:00-09:15   Guilt and Huntington's Disease
Marina Pavlou and Andri Anastasiou (Cyprus)
application/pdfslides Pavlou 
Room: Hall M (Level 1)
 
08:00-09:15   Genetic Counselling and Narrative Practices: A Model of Support for Individuals impacted by Huntington’s Disease
Rhona Macleod (Manchester, UK), Mariangels Ferrer Duch (Bowdon, UK)
Room: Hall N2 (Level 1)
 
Plenary Session III:
'Keeping Brain Cells Functioning – Can we slow Disease Progression'
Room: Hall E
Chair: Jan Frich (Oslo, Norway)
Co-Chair: Hoa Huu Phuc Nguyen (Tübingen, Germany)
 
09:30-09:50   Environmental Modulation of Motor, Cognitive and other Deficits in Rodent Models of HD and other Neurodegenerative Diseases
Stephan von Hörsten (Erlangen, Germany)
 
09:50-10:10   Brain training in Huntington's disease
Marina Papoutsi (London, UK)
application/pdfslides Papoutsi 
 
10:10-10:30   Prospects for exercise and physical activity in HD – what next?
Monica Busse (Cardiff, UK)
application/pdfslides Busse 
 
10:30-11:00   Panel Discussion
 
11:00-11:30   Tea/Coffee Break
 
Parallel Session II:

Parallel - Science Session:
'EHDN Working Groups'
Room: Hall E
Chair: Jean-Marc Burgunder (Bern, Switzerland)
Co-Chair: Michael Orth (Ulm, Germany)
 
11:30-11:40   EHDN Think-Tank Activities
Michael Orth (Ulm, Germany)
 
11:40-11:50   Juvenile Onset Working Group
Oliver Quarrell (Sheffield, UK)
application/pdfslides Quarrell 
 
11:50-12:00   Cognitive Working Group
Jaime Kulisevsky (Barcelona, Spain)
application/pdfslides Kulisevsky 
 
12:00-12:10   Physiotherapy Working Group
Katy Hamana (Cardiff, UK)
application/pdfslides Hamana 
 
12:10-12:20   Young Adults Working Group
Catherine Martin (Glasgow, UK)
application/pdfslides Martin 
 
12:20-12:30   Driving Task Force
Rients Huitema (Groningen, The Netherlands)
application/pdfslides Huitema 
 
 
Parallel - Clinical Practice Session:
'Psychological and psychiatric session'
Room: Hall F2
Chair: Hugh Rickards (Birmingham, UK)
Co-Chair: Andrea Higgins (Dublin, Ireland)
 
11:30-11:50   Treatment of Irritability in HD
Karen Anderson (Washington D.C., USA)
application/pdfslides Anderson 
 
11:50-12:20   Psychological Therapies in HD
Andrea Higgins (Dublin, Ireland)
 
12:20-12:30   Discussion
 
Poster Viewing
 
12:30-14:00   Poster Viewing
Room: Foyer
 
12:30-14:00   Buffet Style Lunch
 
Plenary Session IV:
'Living with HD'
Room: Hall E
Chair: G. Bernhard Landwehrmeyer (Ulm, Germany)
Co-Chair: Astri Arnesen (EHA, Norway)
 
14:00-14:30   How to Cope with HD – dealing with symptoms in your everyday life
Mathias Falk, Sweden
 
14:30-15:00   Growing up in an HD family – Taking on Responsibilities
Victoria Emerson, UK
 
15:00-15:30   Having Children at Risk – Being a Parent
Birgitta Falk, Sweden
 
 
15:30-16:00   Tea/Coffee Break
 

Parallel Session III:

Short Communications II
Room: Hall E
Chair: Nayana Lahiri (London, UK) and Silvia Gines (Barcelona, Spain)
 
16:00-17:00  
  • BRCA Mutations are associated with higher CAG Numbers found in various Polyglutamine Disorders
    Elisabeth Singer (Tübingen, Germany)
    application/pdfslides Singer 
  • Retinal Layers’ Thickness as a Potential Biomarker of Huntington's Disease
    Svetlana Kopishinskaya (Nizhny Novgorod, Russia)
    application/pdfslides Kopishinskaya 
  • Huntington’s Disease Health-Related Quality of Life Questionnaire (HDQoL): Further Validation
    Aileen Ho (Reading, UK)
    application/pdfslides Ho 
  • CAG-Dependent Huntington's Disease Patterns over Decades: The Track-HD and Track-On Studies
    Doug Langbehn (Iowa, USA)
    application/pdfslides Langbehn 
  • Neuronal Correlates and Clinical Predictors for Dysphagia in Huntington’s Disease
    Beate Schumann (Aachen, Germany)
    application/pdfslides Schumann 
 
Workshop
Room: Hall F2
Chairs: Bonnie Hennig-Trestman (USA) and HDYO
 
16:00-17:00   Talking to Kids about HD

application/pdfslides Hennig-Trestman 
 
Plenary Session V:
'EHDN Business Meeting'
Room: Hall E
Chairs: Jean-Marc Burgunder (Bern, Switzerland) and Anne Rosser (Cardiff, UK)
 
17:00-17:45   Update since the last plenary meeting
EC elections, SBAC elections
EHDN Strategic Plan

application/pdfslides Burgunder 
application/pdfslides Rosser 
 
Debate: 'Whose Information is it anyway?'
Room: Hall E  
Chair: Bernhard Landwehrmeyer (Ulm, Germany)
 
17:45-18:30   Debate about Confidentiality in a Huntington’s Case
application/pdfslides Landwehrmeyer 
 

"Viennese Heuriger"
Evening Get Together with an Austrian Style Buffet

19:00-23:00   Evening Get Together, Networking at the Conference Venue
 
19:00-22:00   Movie Night
19:00 Absolute Beginners
20:00 Dancing at the Vatican
21:00 The unwanted inheritance
watch here (pay per view)
 
Programme Friday
Programme Sunday
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