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Euro Huntington's disease network [logo]
Programme Saturday -
Saturday, September 15th, 2018
Breakfast teaching courses
Note: There will be a "Walk for HD" - at the same time. If you wish to join the Walk for HD, you can not join a Breakfast teaching course.
 
08:00-09:15   Career in Research for Young Professionals
Chiara Scaramuzzino (Grenoble, France), Emma Yhnell (Cardiff, UK), Thomas Massey (Cardiff, UK), Fionnuala Margreiter (EHDN)
Room: TBD
 
08:00-09:15   HD Clinical Trial Participation: Maximize chances of involvement
Jenny Townhill (Cardiff, UK)
Room: TBD
 
08:00-09:15   Overview of Different Established Therapies
- Dysphagia, Language and Communication
Angela Nuzzi (Siena, Italy) and Falk Schradt (Ulm, Germany)
- Behavior in a Residential Setting
Welmoed Liefrinck (Katwijk, The Netherlands)
Room: TBD
 
08:00-09:15   Guilt and Huntington's Disease
Marina Pavlou and Andri Anastasiou (Cyprus)
Room: TBD
 
08:00-09:15   Genetic Counselling and Narrative Practices: A Model of Support for Individuals impacted by Huntington’s Disease
Rhona Macleod (Manchester, UK), Mariangels Ferrer Duch (Bowdon, UK)
Room: TBD
 
Plenary Session III:
'Keeping Brain Cells Functioning – Can we slow Disease Progression'
Room: Hall E

Chair: Jan Frich (Oslo, Norway)
Co-Chair: Hoa Huu Phuc Nguyen (Tübingen, Germany)
 
09:30-09:50   Environmental Modulation of Motor, Cognitive and other Deficits in Rodent Models of HD and other Neurodegenerative Diseases
Stephan von Hörsten (Erlangen, Germany)
 
09:50-10:10   Brain training in Huntington's disease
Marina Papoutsi (London, UK)
 
10:10-10:30   Prospects for exercise and physical activity in HD – what next?
Monica Busse (Cardiff, UK)
 
10:30-11:00   Panel Discussion
 
11:00-11:30   Tea/Coffee Break
 
Parallel Session II:

Parallel - Science Session:
'EHDN Working Groups'
Room: TBD

Chair: Jean-Marc Burgunder (Bern, Switzerland)
Co-Chair: Michael Orth (Ulm, Germany)
 
11:30-11:40   EHDN Think-Tank Activities
Michael Orth (Ulm, Germany)
 
11:40-11:50   Juvenile Onset Working Group
Oliver Quarrell (Sheffield, UK)
 
11:50-12:00   Cognitive Working Group
Jaime Kulisevsky (Barcelona, Spain)
 
12:00-12:10   Physiotherapy Working Group
Katy Hamana (Cardiff, UK)
 
12:10-12:20   Young Adults Working Group
Catherine Martin (Glasgow, UK)
 
12:20-12:30   Driving Task Force
Rients Huitema (Groningen, The Netherlands)
 
 
Parallel - Clinical Practice Session:
'Psychological and psychiatric session'
Room: TBD

Chair: Hugh Rickards (Birmingham, UK)
Co-Chair: Andrea Higgins (Dublin, Ireland)
 
11:30-11:50   Treatment of Irritability in HD
Karen Anderson (Washington D.C., USA)
 
11:50-12:20   Psychological Therapies in HD
Andrea Higgins (Dublin, Ireland)
 
12:20-12:30   Discussion
 
Poster Viewing
 
12:30-14:00   Poster Viewing
Room: Foyer
 
12:30-14:00   Buffet Style Lunch
 
Plenary Session IV:
'Living with HD'
Room: Hall E
Chair: G. Bernhard Landwehrmeyer (Ulm, Germany)
Co-Chair: Astri Arnesen (EHA, Norway)
 
14:00-14:30   How to Cope with HD – dealing with symptoms in your everyday life
Mathias Falk, Sweden
 
14:30-15:00   Growing up in an HD family – Taking on Responsibilities
Victoria Emerson, UK
 
15:00-15:30   Having Children at Risk – Being a Parent
Birgitta Falk, Sweden
 
 
15:30-16:00   Tea/Coffee Break
 

In Parallel
Short Communications II
Room: Hall E

Chair: Nayana Lahiri (London, UK) and Silvia Gines (Barcelona, Spain)
 
16:00-17:00   Several presentations selected from submitted abstracts
 
Workshop
Room: Hall F2

Chairs: Bonnie Hennig-Trestman (USA) and HDYO
 
16:00-17:00   Talking to Kids about HD
 
Plenary Session V:
'EHDN Business Meeting'
Room: Hall E

Chairs: Jean-Marc Burgunder (Bern, Switzerland) and Anne Rosser (Cardiff, UK)
 
17:00-17:45   Update since the last plenary meeting
EC elections, SBAC elections
EHDN Strategic Plan

 
Debate: 'Whose Information is it anyway?'
Room: Hall E
 
Chair: Bernhard Landwehrmeyer (Ulm, Germany)
 
17:45-18:30   Debate about Confidentiality in a Huntington’s Case
 

Evening Get Together

19:00-23:00   Evening Get Together, Networking