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Euro Huntington's disease network [logo]
Meeting 2010/04 -

Advanced HD working group- Friday 16 April 2010

 

Advanced HD working group- Friday 16 April 2010

Programme
8.30
Registration
Coffee
 
8.45
Welcome
B. Landwehrmeyer
 
9.00
Introduction
R.A.C. Roos
 
9.10
Questionnaires
J. Spring,-Specialist Unit
C. Westerweel-Nursing/care home settings
K. Youssov- Home care
 
10.10
Update Registry 3.0
Olivia Handley
 
10.30
Coffee Break
 
10.45
Training Late UHDRS
K. Youssov
R.A.C. Roos
 
12.15
Lunch
 
13.15
Visit to Huntington nursing home ‘Overduin’
 *Welcome
 
*Presentation/information about nursing home Overduin  
 
*Presentation/information about ‘Ketenzorg Huntington’ (multidisciplinary  team in the west of NL to provide good patient care)
 
*a case history: Specialized Care: from Home to Topaz Overduin  
*presentation by dietician
*Visit to the different units of the nursing home
 
16.00
Closing remarks to include date/venue next meeting and action plan
B. Landwehrmeyer
S. Duport
 
16.30
Taxis will bring you to Leiden central train station