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Euro Huntington's disease network [logo]
Meeting 2009/03 -

AGENDA

Behavioural Phenotype Working Group

6th - 7th March 2009, Leiden
 
Friday 6th March, 13:30 hrs.
  1. Welcome and Apologies for absence
  2. Introductions
  3. Registry v3.
  4. PBA-s for Registry – update on progress
             1. translation
             2. training programme
             3. reliability and validity testing
             4. re-inclusion of ‘obsessive-compulsive’ question?
             5. certification (should we start in 2009?)
             6. library of scoring examples (Jenny Callaghan)
  5. Validation of BDI and Hamilton against UHDRS in Registry data,
           and factor analysis of UHDRS behaviour section, BDI and Hamilton
           (Jenny Keylock)
  6. Clinical correlates of Apathy (Erik van Duijn)
  7. TRACK-HD study (David Craufurd)
  8. Symptomatic treatment trials (updates)
             1. Apathy (Erik van Duijn)
             2. Irritability (David Craufurd / Hugh Rickards)
             3. Nabilone (Hugh Rickards)
 
19:00 hrs.       Dinner at 'Het Prentenkabinet'  restaurant, Leiden
 
 
Saturday 7th March, 09:00 – 13:00 hrs.

  1. CHDI Clinical Development Programme and FuRSt-pHD (Dan van Kammen)
  2. PREDICT-HD study (Kevin Duff)
  3. update on activities of HSG Behavioural phenotype WG (Mark Groves)
  4. possible joint meeting of EHDN and HSG Behavioural WGs in Vancouver?
  5. Proposed / ongoing projects – informal discussion of suggestions / contributions
  6. Any other business
  7. Date and Venue of next meeting