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Euro Huntington's disease network [logo]
Meeting 2012/08 -

Program WG meeting September 13th, 2012 - Stockholm

9.00-9.15am       Welcome by Marina Frontali
9.15- 9.30am      Updates of WG activity since last meeting by Rhona MacLeod
                           2 yearly review of predictive test guidelines by Raymund Roos
9.30-10.15 am    Recommendations for diagnostic testing: draft paper by David Craufurd
10.15-10.30  am  A new activity of behavioural WG : formation of a sub-group on  Psychological Interventions
                           by Aad Tibben
10.30-10.50am   Coffee 
10.50-11.20am   Research proposal: Collecting data on circulation of information about HD within families
                           by Marina Frontali
11.20-11.50am   Requests for predictive testing from minors by Rhona MacLeod
11.50-12.30pm  How to take forward the work/future WG activity - Plenary
12.30-1.30pm     Lunch   
1.30-3.00pm       HD Research: What helps to facilitate/act as barriers to participation?
                           By Michelle O’Brien and Katie Lingard (YA WG) Jennifer Thomson (Cognitive WG)
3.00-3.30pm       Coffee 
3.30-4.30pm       Joint meeting with Genetic Modifiers WG on eCRF family history questionnaire - plenary
4.30 - 5pm           Conclusions by Aad Tibben