Neurologist, Principal Investigator, Motor Rater The Finnish Parkinson Association
Postal address:
Suvilinnantie 2 20900 Turku Finland
phone:
+358 2 2740400
fax:
+358 2 2740444
e-mail:
The Rehabilitation Centre Suvituuli
The Rehabilitation Centre Suvituuli in Turku started the rehabilitation activities in 1997. The Finnish Parkinson Association has its main office at Suvituuli. It is a non-profit making central organization for Finnish Parkinson societies and clubs, the Finnish dystonia Association and the Finnish Huntington Association. This national network of clubs and societies (18 societies, 100 clubs in 2007) provides sufferers and their families with a channel for learning about their illness and possibilities for rehabilitation, as well as a chance to think through their life values. Sufferers are able to give each other emotional support and to share experiences of coping with the practical changes in their lives. Huntington's disease
Huntington's disease is a progressive hereditary disorder affecting the central nervous system. It affects movement control, memory, judgment and thinking abilities, emotional control and personality. There are no effective treatments for Huntington's disease at the moment. In Finland there are approximately 70-100 Huntington families and at least 200 people suffering from Huntington's disease.
Huntington’s disease activities The
Parkinson Association provides the decision-makers with information
concerning the treatment, rehabilitation and welfare services needed by
sufferers. In cooperation with other societies, the Association aims to
contribute to the quality and accessibility of the services supporting
the patients and their families. The services provided by the
Association include: adaptation training and rehabilitation,
information, counselling and education. Information
on new treatments and rehabilitation programs is provided by different
adaptation training courses, guides, www-pages, a newsletter coming out
five times a year and in various educational meetings. Rehabilitation
courses consist of medical management and adaptation training. The
adaptation training covers the guidance and training of the sufferer
and his or her family to cope with the new situation in their lives.
The rehabilitation team consists of a specialist in neurology, a
psychologist, a physiotherapist, an occupational therapist, a speech
therapist, a social worker and a nurse. More information: Suomen Parkinson-liitto ry, Rehabilitation office +358 2 2740 418 or +358 2 2740 421
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