In 1986 the German HD Association (Deutsche Huntington-Hilfe, DHH) arose from an association called "Familienhilfe e.V." which was already founded in 1970. So it is one of the first associations for Huntington's Disease (HD) worldwide.
Today the DHH counts about 1600 members from HD affected families, care facilities and medical professions dealing with the HD. There are regional associations of the DHH in several German states.
The DHH sees its main function in supporting and counseling people looking for advice. Since 1997 an agency and a helpline with two part-time employees in Duisburg has been supporting consulters and if needed has meditated them to a contact person or a specialist.

For international contacts see www.huntington-assoc.com

H.-Jürgen Brosig Vorsitzender DHH, HDA, HDA Postal address:   Ansgarstraße 3 25524 Itzehoe Deutschland phone:   +49 4821 6049796 fax:   +49 4821 6049796 e-mail:

Mrs. Christiane Lohkamp ehemalige Vorsitzende DHH, HDA, Lead Facilitator Quality of Life Deutsche Huntington-Hilfe e.V. Postal address:   Sprollstraße 89 70597 Stuttgart Deutschland phone:   +49 711 7289605 fax:   +49 711 7288583 e-mail:

Jürgen Pertek Sozialwissenschaftler: Beratung, Projekte, HDA

Christine Odenbach Mitgliederverwaltung, Buchhaltung