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EHDN2018 DISEASE NETWORK PROJECTS LOGIN
 
 
  
Locations - Italy - Study Site LIRH -
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--->Marburg-Uni
--->[+]Lübeck
--->Marburg-KPP
--->Mainz
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--->Coordination
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--->Coordination
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--->Enschede
--->Groningen
--->Leiden
--->[-]Maastricht
--->[+]Documents
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--->Bergen
--->Oslo
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--->Coordination
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--->Gdansk
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--->[+]Krakow
--->Poznan
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--->[+]Coordination
--->[+]HD Associations
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--->[+]Ufa
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--->Coordination
--->HD Associations
--->Alicante
--->Badajoz
--->Barcelona - Bellvitge
--->Barcelona - Clinic i Provincia...
--->Barcelona - Mutua de Terra...
--->Barcelona - Santa Creu i Sa...
--->Barcelona - Merced
--->Bilbao
--->Burgos
--->Canaries
--->Granada
--->Fuenlabrada
--->[+]Madrid-BTCIEN
--->Madrid - Clínico
--->Madrid - FJD
--->Madrid - RyC
--->Murcia
--->Oviedo
--->Palma de Mallorca
--->Pamplona
--->Santiago
--->Sevilla
--->Sevilla-HUVRocio
--->Sevilla-St-Ana
--->Valencia
--->Zaragoza
--->[+]Sweden
--->[+]Switzerland
--->[-]U.K.
--->Coordination
--->HD Associations
--->Links
--->[-]UKHDN
--->Member Sites
--->Activities
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--->Meetings
--->Research prog
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--->Aberdeen
--->[+]Ayr
--->Belfast
--->Birmingham
--->[+]Blandford Forum
--->Bristol
--->Cambridge
--->Cardiff
--->Dundee
--->Edinburgh
--->Exeter
--->Fife
--->Forth Valley
--->Glasgow
--->Gloucester
--->Hull
--->Inverness
--->Launceston
--->Leeds
--->Leicester
--->Liverpool
--->London - Guy's Hospital
--->London - Hammersmith
--->London - NHNN
--->London - Royal Hospital
--->London - St. George´s
--->Manchester
--->Newcastle-Upon-Tyne
--->[+]Northampton
--->Nottingham
--->Oxford
--->[+]Plymouth
--->Poole
--->Preston
--->Reading
--->[+]Sheffield
--->Southampton
--->Stoke-on-Trent
--->Swindon
--->Wrexham
--->[+]Outside Europe
[-]Working Groups
--->[+]Advanced HD
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--->[+]Meetings
--->[+]Brain and Tissue Banking
--->[+]Cognitive Phenotype
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--->[+]Genetic Testing
--->[+]Genetic Modifiers
--->[+]Health Economics
--->[+]Heated TF
--->[+]Imaging
--->[+]Juvenile HD
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--->[+]Meetings
--->[+]Neuroprotective Therapy
--->[+]Physiotherapy
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--->[-]Meetings
--->Meeting 2005/03
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--->Meeting 2006/09
--->Meeting 2009
--->Meeting 2011
--->[+]Dieticians
--->[+]SALT
--->[+]Dental care
--->[-]Occupational
--->[+]Surgical Approaches
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--->[+]Dates
--->[-]Meetings
--->Meeting 2005/07
--->Meeting 2005/09
--->Meeting 2006/09
--->Meeting 2008/04
--->Meeting 2009
--->[+]Young Adults
[-]Events
--->[-]EHDN 2018
--->Announcement
--->Announcement 2020
--->Introduction
--->Programme Fri
--->Programme Sat
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--->Documents
--->Feedback
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--->Announcement
--->Introduction
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--->Programme Fri
--->Programme Sat
--->Programme Sun
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--->Documents
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--->EHDN 2014
--->[-]EHDN 2012
--->Introduction
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--->Programme Fri
--->Programme Sat
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--->[+]Travel & Accommodation
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--->EHA Programme
--->Reception Dinner
--->About Stockholm
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--->Pathogenic mechanisms
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--->Clinical care
--->Experimental Rx
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--->[-]EHDN 2010
--->Introduction
--->Programme I
--->Programme II
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--->EHA Programme
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--->Plenary Dinner
--->Social Programme
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--->[+]Travel and Location
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--->Programme
--->Additional Meetings
--->EHA Programme
--->Social Programme
--->Kids Programme
--->Important Dates
--->Voting
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--->Evaluation & Feedback
--->[+]Travel and Location
--->[+]About Lisbon
--->[+]Documents
--->Committees
--->Contact
--->[-]EHDN 2007
--->Final Programme
--->Additional Meetings
--->Meeting Venue
--->[-]About Dresden
--->Cultural Entertainment
--->Sightseeing
--->Food & Drink
--->[+]EHDN 2006
--->[-]EHDN 2005
--->Final Programme
--->Plenary Dinner
--->Registration
--->Working Groups
--->Meeting Venue
--->Manchester
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--->[-]EHDN 2004
--->Introduction
--->Final Programme
[-]Communication
--->Contact Form
--->Chat Rooms
--->Mailinglists - public
--->Newsletter
--->Job Offers
Lega Italiana Ricerca Huntington e malattie correlate (LIRH) onlus è una fondazione senza scopo di lucro che sostiene la ricerca scientifica, conduce a sua volta attività di ricerca, fornisce assistenza gratuita ai pazienti, promuove la conoscenza della malattia, anche nei confronti degli specialisti, e divulga i risultati della ricerca.
 
 
SEDI SUL TERRITORIO
La Fondazione LIRH dispone di punti di osservazione e sedi ambulatoriali sul territorio in cui viene fornita gratuitamente assistenza ambulatoriale specialistica e vengono, allo stesso tempo, raccolti informazioni e dati utili a fini di ricerca. 
I punti rete sono attualmente presenti presso:
 
Roma
Sede operativa della Fondazione LIRH onlus, Via Varese, 31 - 00185 Roma
Sede Istituto CSS Mendel - convenzionato con la Fondazione LIRH onlus – Viale Regina Margherita, 261 – 00198 Roma
 
Milano
c/o Studio Medico Certosa - convenzionato con la Fondazione LIRH onlus - Viale Certosa 121 -  20151 Milano
 
Campi Bisenzio (Firenze)
c/o Pubblica Assistenza - convenzionato con la Fondazione LIRH onlus - Via Orly 35 - 50013 Campi Bisenzio (FI)
 
Isernia
c/o Gea Medica Istituto Europeo di Riabilitazione – convenzionato con la Fondazione LIRH onlus – Via dell’Acqua Solfurea 1 – 86170 Isernia 
 
Catania
c/o U.M.R. (Hera onlus) - Via Leucatia Croce, 6 - 95030 S. Agata Li Battiati (CT)
 
 
Per informazioni e appuntamenti: numero verde 800 388 330 dal lunedì al venerdì, dalle 9.00 alle 14.00 e dalle 15.00 alle 18.00.
 
 
 
Staff: 
 
Ferdinando Squitieri, MD, PhD, Principal Investigator
 
Barbara D’Alessio, Coordinamento dello studio
Simone Migliore, psicologo
Francesca Lovo, psicologa
Irene Mazzante, psicologa
Sabrina Maffi, psicologa
Iolanda Santimone, biologa
  
 
 
LIRH aderisce a:
IHA - International Huntington Association
EHA - European Huntington Association
EHDN - European Huntington Disease Network
UNIAMO FIMR onlus - Federazione Italiana Malattie Rare 
 
 
  
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