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Lega Italiana Ricerca Huntington e malattie correlate (LIRH) onlus è una fondazione senza scopo di lucro che sostiene la ricerca scientifica, conduce a sua volta attività di ricerca, fornisce assistenza gratuita ai pazienti, promuove la conoscenza della malattia, anche nei confronti degli specialisti, e divulga i risultati della ricerca.
 
 
SEDI SUL TERRITORIO
La Fondazione LIRH dispone di punti di osservazione e sedi ambulatoriali sul territorio in cui viene fornita gratuitamente assistenza ambulatoriale specialistica e vengono, allo stesso tempo, raccolti informazioni e dati utili a fini di ricerca. 
I punti rete sono attualmente presenti presso:
 
Roma
Sede operativa della Fondazione LIRH onlus, Via Varese, 31 - 00185 Roma
Sede Istituto CSS Mendel - convenzionato con la Fondazione LIRH onlus – Viale Regina Margherita, 261 – 00198 Roma
 
Milano
c/o Studio Medico Certosa - convenzionato con la Fondazione LIRH onlus - Viale Certosa 121 -  20151 Milano
 
Campi Bisenzio (Firenze)
c/o Pubblica Assistenza - convenzionato con la Fondazione LIRH onlus - Via Orly 35 - 50013 Campi Bisenzio (FI)
 
Isernia
c/o Gea Medica Istituto Europeo di Riabilitazione – convenzionato con la Fondazione LIRH onlus – Via dell’Acqua Solfurea 1 – 86170 Isernia 
 
Catania
c/o U.M.R. (Hera onlus) - Via Leucatia Croce, 6 - 95030 S. Agata Li Battiati (CT)
 
 
Per informazioni e appuntamenti: numero verde 800 388 330 dal lunedì al venerdì, dalle 9.00 alle 14.00 e dalle 15.00 alle 18.00.
 
 
 
Staff: 
 
Ferdinando Squitieri, MD, PhD, Principal Investigator
 
Barbara D’Alessio, Coordinamento dello studio
Simone Migliore, psicologo
Francesca Lovo, psicologa
Irene Mazzante, psicologa
Sabrina Maffi, psicologa
Iolanda Santimone, biologa
  
 
 
LIRH aderisce a:
IHA - International Huntington Association
EHA - European Huntington Association
EHDN - European Huntington Disease Network
UNIAMO FIMR onlus - Federazione Italiana Malattie Rare 
 
 
  
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