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Euro Huntington's disease network [logo]
Locations - Norway - Study Site Oslo - RH -
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oslo universitY HOSPITAL

Oslo University Hospital is a highly specialized hospital in charge of extensive regional and local hospital assignments and the provision of high quality services for the citizens of Oslo. The hospital also has a nationwide responsibility for a number of national and multi-regional assignments and has several national centres of competence. Oslo University Hospital consists of eight medical divisions in addition to the central unit Oslo Hospital Services, which provides non-medical services to the rest of the hospital. More than 20,000 employees are engaged with activities at more than 40 different locations.

Oslo University Hospital (OUH) is one of three Norwegian study sites that participate in EHDN's international observational study REGISTRY. Responsible departments are the department of Medical Genetics, Department of Neurology and the Department of Neurohabilitation. Here patients and families with Huntington's Disease (HD) are seen for genetic counseling, testing and treatment. Neurologists, geneticists, psychologists, nurses and secretaries are all familiar with HD.

If you are interested in participating in REGISTRY study please contact Nancy or the contact persons listed for the various departments:

Nancy Borgerød: 
Tlf.: 23075581
E-mail:  

For more information about OUH in general, please visit our web-site at: www.oslo-universitetssykehus.no

HD SERVICES AND CLINICS 
at Oslo University Hospital
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Department of Medical Genetics
Address: Forsningsveien 2b.

Postal address: Postboks 4956 Nydalen, 0424 Oslo

At the Department patients and their families can receive genetic counseling and carry out a genetic test. The patient group consists mainly of patients in their early stages with HD related problems. There is a close collaboration between the department and the National Centre for Rare Disorders when it comes to the care of HD patients and their families.

The HD team at department of medical genetics:
Genetic Counselor, Madeleine Fannemel: uxmafa@ous-hf.no
Genetic Counselor, Oddveig Rosby: uxadro@ous-hf.no       
Genetic Counselor, Elisabeth Dramstad: UXDREL@ous-hf.no
Chief of Office, Nancy Borgerød: nborgero@ous-hf.no    

How to find us:  
By tram: line 17 or 18 direction Rikshospitalet, stop at Gaudstadalleen.
By metro: Take one of the metro lines going West 3,4,5 or 6 and stop at the University of Oslo, Blinderen. For other options and timetables go to www.ruter.no

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Department of Neurology
Address: Sognsvannsveien 20
Postal address: Postboks 4956 Nydalen, 0424 Oslo
 
The department is mainly involved in diagnosing and follow-up of affected subjects
in early and middle stages of Huntington.
 
Contacts:
Consultant in Neurology Jan Frich       Study Nurse Ragnhild Wehus
Tlf.: 23 07 35 80                                     Tlf.: 23073579
email:                          email:
 
How to find us:  
By tram: line 17 or 18 to Rikshospitalet (the hospital is the last stop).
By metro: metro line 1 direction West, stop at Gaustad stasjon. Metro lines 3,4,5 and 6 direction West, stop at Forskningsveien. 10 mins walk to the hospital.

For other options and timetables go to www.ruter.no
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Department of Neurohabilitation
Address: Kirkeveien 166, building nro 29
Postal address: Avdelning for Nevrohabilitering, 0407 OSLO
 
The department’s main activities are related to diagnostics and follow-up of HD patients (adults over 18 years old) with complex impairments that require rehabilitation at specialized units.

Contact:
Psychologist Liv Barnett
E-mail: UXBALQ@ous-hf.no
Tlf.: 22117554    

How to find us:
By tram: line 17 or 18 in direction west. Stop at Ullevål Hospital (Ullevål sykehus).

For other options and timetables go to www.ruter.no
SUPPLEMENTARY SOURCES OF INFORMATION AND CARE ASSISTANCE FOR HD FAMILIES
HUNTINGTON´S ASSOCIATION OF NORWAY
More information about contact persons, meetings and activities can be found at www.huntington.no. You may also want to contact the Association via e-mail carl.dversnes sor.no

CENTRE FOR RARE DISORDERS   
Address: Forskningsveien 3b
Postal address: Postboks 4950 Nydalen 0424 Oslo, Norge
 
The Centre for Rare Disorders is an interdisciplinary, nationwide competence centre, which offers information, counseling and seminars on a selected range of rare disorders. The service is aimed at the appropriate patients and their families, and at professionals working with these disorders. Anyone may contact the centre, and a referral or advance appointment is not required.
Further information can be found at www.sjeldnediagnoser.no. You may also want to contact one of the counselors with special knowledge about HD.
Phone: +47 23075340 E-mail: