Locations - U.K. - Study Site Fife
Clinic Contact Details
Mrs Nicola Johns - Huntington's Disease Specialist Nurse
Scottish Huntington's Association
Whyteman's Brae Hospital
Fife, KY1 2ND
Tel: 01592 647993
***NO EMAIL*** Huntington's Disease Management
Clinics are held on a Friday in Whyteman's Brae Hospital, Kirkcaldy.
The Euro-HD Clinic is held on a Tuesday or Friday afternoon in Whyteman's Brae Hospital, Kirkcaldy. Initial enrolment is carried out by Nicola Johns, HD Specialist Nurse/Study Co-ordinator. Participants will then be invited back annually to undergo a battery of assessments and given feedback if they choose. Who is the clinic for
Individuals and families affected by or who are at risk of Huntington's Disease.
The staff of the Fife HD Clinic are
Dr Simon Rubidge, Consultant Psychiatrist Debbie Pitcaithly/Sue Mackenzie, Clinical Psychologists
Jillian Foster, Senior Huntington’s Disease Specialist Nurse Nicola Johns, Huntington’s Disease Specialist Nurse Norma Henderson, Admin/Resource Worker Who can refer to the HD Management Clinic
Clients living within the Fife area can be referred to the clinic by their G.P., Huntington’s Specialist , Genetics service or other health care profession
. Service offered
Cognitive and Psychological assessment and treatment
Mental Health Assessment
Entry into European HD study
Multi-agency input may also be required. This may include occupational therapy, speech & language therapy, physiotherapy and/or dietetics.
If you would like to meet with a Huntington’s Specialist please contact the Fife Service on:
Tel: 01592 647993
Monday – Thursday 8.30AM -5.30PM
Friday 8.30AM- 4.00PM
If you are phoning out of office hours please leave a message on the answer machine, leaving your name and telephone number and we will return your call as soon as possible.
To offer an individual assessment for those affected by Huntington’s Disease, including medical, psychological and social assessment.
To work with clients and carers to establish individualised packages of care and treatment.
To work collaboratively and closely with other professions.
To ensure clients have access to all the services required.
To increase understanding of Huntington's Disease by clients, carers & professionals.
To continue and develop Fife as a study site for European HD research network