Locations - U.K. - Study Site Fife
Clinic Contact Details
Mrs Nicola Johns - Huntington's Disease Specilaist Nurse
Scottish Huntington's Association
Whyteman's Brae Hospital
Fife, KY1 2ND
Tel: 01592 647993
***NO EMAIL*** Clinic locations
Clinics are held on a Tuesday afternoon 1pm - 3pm in Whyteman's Brae Hospital, Kirkcaldy. There can be some flexibility regarding location if there is difficulty in travelling to Kirkcaldy e.g. Community Hospital, St Andrews can be used
The Euro-HD Clinic -
weekly assessment completed by an HD Specialist Nurse. Participants are then invited annually to undergo the same battery of assessments and can be given feedback regarding the outcome of their assessments.
Who is the clinic for
Individuals and families affected by or who are at risk of Huntington's Disease.
The staff of the Fife HD Clinic are
Dr Gareth Thomas - Consultant Psychiatrist
Debbie Pitcaithly - Clinical Psychologist
Jillian Foster - Project Manager/ Huntington’s Specialist
Nicola Johns - Huntington’s Specialist
Peter Brockie - Phlebotomist
Jean Rothery - Admin/Resource Worker Who can refer to the HD Management Clinic
Clients living within the Fife area can be referred to the clinic by their G.P., Huntington’s Specialist , Genetics service or other health care profession
. Service offered
Cognitive and Psychological assessment and treatment
Mental Health Assessment
Entry into European HD study
Multi-agency input may also be required. This may include occupational therapy, speech & language therapy, physiotherapy and/or dietetics.
If you would like to meet with a Huntington’s Specialist please contact the Fife Service on:
Tel: 01592 647993
Monday – Thursday 8.30AM -5.30PM
Friday 8.30AM- 4.00PM
If you are phoning out of office hours please leave a message on the answer machine, leaving your name and telephone number and we will return your call as soon as possible.
To offer an individual assessment for those affected by Huntington’s Disease, including medical, psychological and social assessment.
To work with clients and carers to establish individualised packages of care and treatment.
To work collaboratively and closely with other professions.
To ensure clients have access to all the services required.
To increase understanding of Huntington's Disease by clients, carers & professionals.
To continue and develop Fife as a study site for European HD research network