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Euro Huntington's disease network [logo]
Locations - U.K. - Study Site Leicester -
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Leicestershire Huntington's Disease Service
In-patient and Community Facility
 Referrals/Contact, including information about future research trials:
Dr Reza Kiani
Consultant Psychiatrist, Principal Investigator
Leicestershire Partnership NHS Trust, Mill Lodge
Postal address: Mill Lane
Kegworth DE74 2DZ
U.K.
phone: +44 1509 561615
fax: 01509 561646

LEICESTERSHIRE AND NORTHAMPTONSHIRE HUNTINGTON'S DISEASE SERVICE

Clinical Service

Inpatient Facilities:
  • Assessment, treatment and care for people in all stages of disease.
  • Individual en-suite rooms in homely 9-bedded units, with facilities for all domestic needs.
  • Snoezelen, Whirlpool Spa Bath and Sensory Garden form part of the facilities that emphasis relaxation.
  • Structured activities and outings are scheduled from 9.30am each day.  Using the strengths model, skills are maintained and encouraged to develop to promote independence, self reliance and improve self-esteem.
 Community Teams:
  • Dedicated Multi-Disciplinary Team (MDT) supports people in their own homes or care facilities.
  • MDT out-patient clinic is provided.
  • Training of staff providing cognitive rehabilitation.
  • Family support, education and advice is available and forms part of the Care Plan.
  • Support for people with HD, Carers and those 'at risk'.
Referrals to the HD Service can be completed by a GP or Hospital Consultant:
  • Initial assessment (usually 1 - 1.1/2 hours) completed in the patients own home, in the presence of a carer/partner or close companion.
  • Agreement reached in regard to future contact/needs that is typically multi-disciplinary.
Contact:
  • Out-patients appointment.
  • Allocation of HD Specialist Nurse to maintain contact, provide support and involve other professionals as appropriate.
  • Continued contact post-discharge is organised via HD Community Nurse Specialists and Out-patient Clinics.
 
Referrals to the HD Service can be completed by a GP, Hospital Consultant, family member, carer or self-referral:

  • Initial assessment (usually 1 - 1 1/2 hours) completed in the patients own home, in the presence of a carer/partner or close companion.
  • Agreement reached in regard to future contact/needs that is typically multi-disciplinary.
Contact:
  • Outpatients appointment.
  • Allocation of HD Specialist Nurse to maintain contact, provide support and involve other professionals as appropriate.
  • Continued contact post discharge is organised via HD Community Nurse Specialists and Outpatient Clinics.
The Leicestershire/Northamptonshire Advisory HD Service (forms part of Leicestershire Partnership NHS Trust) and provides long term care and contact with patients in all stages, from 'at risk' through to end of life.  The disciplines involved include:

  • Psychiatrist
  • Psychology
  • HD Nurse Specialists
  • Occupational Therapy
  • Speech Therapy
  • Administration/Secretarial Support
  • Physiotherapy
  • Ancilliary Staff
  • Research Staff
Specialist Team includes:
  • Neurology
  • Genetics
  • Social Services
 
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DIRECTIONS:
Road:  Mill Lodge is based in the village of Kegworth, half a mile from Junction 24 of the M1.
Air:  2 miles from East Midlands Airport.
Train:  5 minutes from East Midlands Parkway Train Station
 
Research and Development:
  • Complete annual assessments for people who are involved in the REGISTRY Project.
  • Upcoming research projects, including drug trials will be posted here.
Research Interests:
  • Contribute to Behavioural and End of Life Working Groups.
  • Reducing the impact of Psychiatric/Cognitive changes in HD.
  • Enriched environment and its role in skill maintenance.
  • Improving communication in HD.
  • Sharing of 'at risk' information in families.
  • Teaching and support of staff to ensure high standards and improved quality of life for people with HD and their families.