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Euro Huntington's disease network [logo]
Locations - U.K. - Study Site London-Royal Hospital for Neurodisability -

Contact details

The Royal Hospital for Neuro-disability
West Hill
Putney
London
SW15 3SW
United Kingdom


Tel: + 44 208 780 4500
Website: www.rhn.org.uk
 
 coordinator Dr Sophie Duport
+44 208 780 4500 ext 5142

Further Information

There are no out-patient clinics and the hospital receives referrals from the whole of the UK. If you have any queries about admissions, please contact the Admissions Manager, Carol Groves on 020 8780 4513 or email:

Environment

Wolfson Ward is a purpose built unit located within a separate building in the hospital’s grounds. Opened in 1997 the environment is well equipped to suit the patient group and provides 14 single rooms. Wolfson has a range of facilities such as a structured environment balancing stimulation and relaxation, providing opportunities for therapy and other activities within the unit. It also has its own private garden.
 
Andrew Reed Ward has 18 single rooms as well as day areas. The ward has a snoezelen room.
 
Coombs Ward provides 10 single rooms and one shared room. The day area of this ward is a beautiful conservatory overlooking the gardens giving a very tranquil atmosphere.
 
Wards have full access to the wealth of resources available at the hospital. This include a wide range of clinical services as well as community resources such as an on site GP surgery, dental facilities, pharmacy, bank, shop, post office, café, hairdressers and chapel.

Social and Recreational Activities


Each ward runs activities, which form an integral part of every day life. The teams organise several recreational groups and a wide range of special interest groups ranging from music appreciation to literature and current affairs are also provided.
Numerous outings and holidays are available, which include trips to the theatre, areas of local interest and sporting events.
 

Introduction

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The Royal Hospital for Neuro-disability provides assessment, rehabilitation, treatment, long-term and respite placements for people with Huntington’s disease. The service is provided on three wards, which aim to meet the needs of patients in different stages of the disease.
 
Wolfson Ward specialises in services for patients in the middles stages of the disease.
Andrew Reed Ward caters for those in the mid to late stages
Coombs Ward has been specially developed for residents in the late stages of Huntington’s disease.
 
Wards work closely together to ensure continuity of care and maintenance of professional links.
The multidisciplinary teams on these wards have recognised expertise in the treatment and management of Huntington’s and are flexible to the changing needs of the patients.
The hospital provides a range of further resources available to patients and their family.

Research

A large number of staff are involved in research.
Research range from basic science to clinical investigations.
The unit has strong links with the HDA on both regional and national levels.
A list of staff and their roles can be found below.

Nursing practice
Mark Baker
International Fellow in Nursing in Complex Neurological Disabilities.
mbaker@rhn.org.uk
+44 8780 4500 ext 5149
 
Music Therapy
Dr Wendy Magee
International Fellow in Music Therapy
drwmagee@rhn.org.uk
+44 208 780 4500 ext 5146
Families
Dr Ceri Bowen
International Fellow in Working with Families
cbowen@rhn.org.uk
+44 208 780 4500 ext 5143
 
Clinical Psychology
Dr Sonja Soeterik
Consultant clinical psychologist
ssoeterik@rhn.org.uk
+44 208 780 4500
ext 5134
Postural management
Mrs Rita Twiston-Davies
Senior Specialist SLT
rtdavies@rhn.org.uk
+44 208 780 4500 ext 5230
 
Occupational therapy
Liz Broadhurst
Occupational Therapist
lbroadhurst@rhn.org.uk
 +44 208 780 4500
Ext 5108
Dietetics
Mrs Helen Finch
Head of Dietetics
hfinch@rhn.org.uk
+44 208 780 4500 ext 5080
 
Physiotherapy
Sue Hall
Head of Physiotherapy
shall@rhn.org.uk
+44 208 780 4500
ext 5088
Tryptophan metabolism/oxidative stress
Dr Nicholas Stoy
Senior Physician
nstoy@rhn.org.uk
+44 208 780 4500 ext 5017