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Euro Huntington's disease network [logo]
Locations - U.K.- Study Site Northampton -

The Team

Welcome to the Enroll-HD clinic at St Andrew’s Healthcare. Our clinic runs monthly and is held on the last Friday afternoon of each month within Kemsley Building. Our small, friendly clinic is staffed by experienced clinical and research personnel. Our patients are reviewed annually at a comprehensive assessment appointment with additional review appointments as required. Our clinic is currently involved in the Enroll HD project of the European Huntington’s Disease Network.

For further information or queries please contact Lucy Lee, Enroll-HD Administrator, on 01604 616088 or email

Service Features for In-Patient Care:

A comprehensive multidisciplinary team (MDT) is available to meet all requirements and skilled care is provided by a dedicated HD team of on-site staff, including:
• Neuropsychiatrist
• Neuropsychologist
• In-house GP service
• Experienced nursing staff
• Physiotherapist
• Dentist
• Occupational therapist
• Podiatrist

The team offer assessment and treatment of symptoms throughout all stages of HD. In addition to in-patient care, day case is available for those living within a 25 mile radius of Northampton. Respite care can be offered subject to availability. Outpatient assessment and treatment advice can also be provided upon request.

Our outcome tools including the SASBA and OAS-MNR have been created through an active research programme within St Andrew’s. Our practices are regularly audited against professional and industry standards and we have close relationships with the HDA. We provide specialist training in HD to all our staff and our HD staff team are represented on various EHDN working groups.
Prinicpal Investigators


Dr Elvina Chu BSc (Hons), MBBS, MRCPsych Consultant Neuropsychiatrist

Dr Elvina Chu is the Pathway Lead for Huntington’s disease service at St Andrew’s Healthcare. Elvina is a member of the European Huntington's Disease Network and Principal Investigator for the Northampton Enroll-HD study site. Her research interests include psychosis, schizophrenia and Huntington’s disease. Career achievements include a Clinical Research Fellowship at UCL Institute of Neurology & British Neuropsychiatric Association winner of the Alwyn Lishman Prize, 2009.

Clinical Psychologist

Miguel Montenegro Clinical Psychologist
Miguel is a registered clinical psychologist with the Health Care Professions Council and a Chartered Psychologist and Associate Fellow with the British Psychological Society. He is also a qualified Psychotherapist/Counsellor and Fellow member of the National Counselling Society. He completed his Clinical Doctorate in 2013 and has since embarked on a career in Neuropsychological rehabilitation. As well as working in the field of applied neuropsychology and neurorehabilitation he is also involved in service-level research which is regularly disseminated to conferences and peer-reviewed papers. His current research interests include implicit biases and motivations, attention and memory, vocational neuropsychological rehabilitation and goal setting in neurorehabilitation. He works from a strong ethical framework, with person-centred care at the core. He is passionate about his work and the people he works with.

Physiotherapists and Researchers

Ella Hancock-Johnson BSc (Hons)
Ella is a Research Assistant at St Andrew's Healthcare, with a  background in Psychology. As well as working towards a Master of Science in Psychological Well-being, Ella's interests include challenging behaviour, psychological wellbeing of mental health staff, cognitive assessment and Huntington's Disease.

Rosemary Newbery, MCSP Lead Specialist Physiotherapist
Rosemary is the Lead Physiotherapist for the Neuropsychiatry Pathway at St Andrew's Healthcare with extensive experience in the management of neurological conditions and end of life care. Rosemary's specific expertise is in managing the mobility and postural issues of people with mid and late-stage Huntington's disease and is an active member of the EHDN Quality of Life working group.

Rubilyn Esmeralda Highly Specialised Physiotherapist

Lucy Lee BSc (Hons)
Lucy is a Research Administrator at St Andrew's Healthcare and has previously worked within the Police, Teaching and Administration. As part of her role in the Research Department she is the Study Site Administrator for the Enroll-HD project.

Publications

• Harding, V., Stewart, I. & Knight, C. (2012). Healthcare workers’ perceptions of contributors to quality of life for people with Huntington’s disease. British Journal of Neuroscience Nursing.
• Cook, C., Page, K.,Wagstaff, A., Simpson, SA., Rae, D., (2012) Development of guidelines for Occupational Therapy in Huntington's Disease. Neurodegenerative Disease Management. 2(1) 79-87 , 8, 191-197.
• Boor, A., & Knight, C. (2007). The Utility of Dementia Care Mapping within a Huntington’s disease Service as a Quality Outcome Measure. Huntington’s disease Association Newsletter, December.


For further information or to receive a copy of these publications please contact Lucy Lee on 01604 616088 or email @standrew.co.uk
 
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Location

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St Andrew's Healthcare
Northampton
Billing Road
Northampton
NN1 5DG

Tel: 01604 616000

www.stah.org/hd

How to find us

http://www.stah.org/contact-us/contact-us.aspx