Contact Details Beverley Soltysiak New Heathleigh Unit MountGouldHospital Mount Gould
Road Plymouth PL4 7QD Tel: 01752 434535 Fax: 01752 272431 Email:
About Us
Plymouth Huntington’s Service is a service specifically for people affected by Huntington’s Disease and their families, based at MountGouldHospital in Plymouth. Our aim is to provide support, monitoring, interventions and advice for people with HD and their families, to enable individuals to stay at home for as long as they wish, or are able to. The Team: Beverley Soltysiak – Specialist HD Nurse Advisor David Harrison – Specialist HD Nurse Leanne Walker – DeNDRoN support Contributions from Psychiatrists
We also have access to Speech and Language Therapy, OT, Physiotherapy, Clinical Psychology and a Dietician. We work very closely with our Social Services colleagues. Referral to our service is usually via your GP or other Health Professional. However, individuals can refer themselves, or a family member (as long as that person has agreed to the referral), by telephoning 01752 434911 or 01752 434535.
Our Service
The service provides ongoing assessment, monitoring, support and therapeutic interventions to the person with Huntington’s Disease (HD) or anyone else affected by HD in the Plymouth area. This can be provided in your home or in the Outpatients Clinic.
Activities can be carried out in groups or on an individual basis within your local community. Training is a key aspect of what we do. Euro HD Clinics are held once a month, and provide an opportunity for people with HD, those who belong to a family at risk of HD and caregivers to be part of a Europe wide data base and to identify people who might like to be involved in studies or clinical trials in the future. During the clinic patients complete a number of motor, behavioural and cognitive assessments with a psychiatrist and nursing staff. There is also the option of providing blood and urine samples for ‘biomarker’ information. Once enrolled, patients come on a yearly basis to complete the same assessments. For more information, please visit http://www.plymouthpct.nhs.uk/services/heathleighunit/Pages/eurohd.aspx