Consultant in Rehabilitation and Brain Injury, Principal Investigator, Poole Hospital Foundation Trust, Brain Injury Service.

Postal address: Poole Hospital
                     Longfleet Road
                     Poole
                     Dorset
                     BH15 2JB

Tel: +44 1202 448 070
email: john.burn@poole.nhs.uk
              
 
 

The Poole Euro-HD Registry is located within the Dorset Huntington's Disease clinical network.  This serves patients and families symptomatic, or at risk of HD.  It consists of:

   A community service provided principally by the community rehabilitation team; Disability Action, and the Dorset and Wiltshire HDA specialist nurse.
 
   A clinic service at Poole and Dorchester hospitals, with a specialist clinic for more complex HD patients held quarterly at Poole Community Health Clinic.  This clinic will be held more frequently as the register becomes established.
 
   A nursing home service provided by Dr Stephen Simpson, consultant psychiatrist.

• Diagnosis and medical review
• Multidisciplinary rehabilitation management
• Provision of information
• Family counseling and support
• Genetic advice
• Specialist dental and dietetic assessment and advice
• Psychological assessment and management
• Neropalliative care
• Entry and monitoring byt the Euro-HD registry

 

Dorset HD Specialist Nurse:  Mrs Wendy Bailey
                                      Disability Action
                                      01202 705 496
 
HDA Regional Advisor:   Mrs Ann Pathmanaban
                                01425 627 960
 
Referrals are accepted for Dorset residents from any source, but may be checked first with the patient's own GP.  They should be addressed initially to Dr JPS Burn.

To provide on-going specialist care of HD patients and their families.  We do not discharge from continiued follow-up.