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Euro Huntington's disease network [logo]
Locations - U.K. - Study Site Poole -

About Us

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The Dorset Huntington's Disease clinical network serves patients and families symptomatic, or at risk of HD.  It consists of:

A community service provided principally by the community rehabilitation team; Disability Action, and the Dorset and Wiltshire HDA specialist nurse.
 
A clinic service at Poole and Dorchester hospitals, with a specialist clinic for more complex HD patients held quarterly at Poole Community Health Clinic.  This clinic will be held more frequently as the register becomes established.
 
A nursing home service provided by Dr Stephen Simpson, consultant psychiatrist.

The ENROLL-HD research clinics run alongside these services and are held at least monthly, in the Neurology Research Suite in the Eddie Hawker wing, Poole General Hospital.

Services provided

  • Diagnosis and medical review
  • Multidisciplinary rehabilitation management
  • Provision of information
  • Family counseling and support
  • Genetic advice
  • Specialist dental and dietetic assessment and advice
  • Psychological assessment and management
  • Neropalliative care
  • Entry and monitoring byt the Euro-HD registry
 

Our Aim

To provide on-going specialist care of HD patients and their families.  We do not discharge from continiued follow-up.

As well as Registry, the team at Poole would be interested in future studies that explore quality of life and rehabilitation aspects of Huntington’s Disease, as well as phase III intervention studies.

Who To Contact

For HD care, contact Dr John Burn, Consultant in Rehabilitation and Brain Injury

Tel: +44 1202 448 070
email: john.burn@poole.nhs.uk
              
For research, contact Annemieke Fox, Neurology Research Nurse

Tel: 01202 263210
email: annemieke.fox@poole.nhs.uk

Referrals are accepted for Dorset residents from any source, but may be checked first with the patient's own GP.  They should be addressed initially to Dr JPS Burn.
 

The Clinic team at Poole includes:

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John Burn,
Consultant in Rehabilitation and Brain Injury
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         Annemieke Fox,
         Neurology Research Nurse
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  Lynette Every,
  Parkinson’s Disease/Neurology Research Nurse
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     Ann Pathmanaban,
     HDA Regional Advisor
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Judith Dube,
Neurology Research Nurse


Location Map

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How to Find Us

Detailed travel information and maps for Poole Hospital, Eddie Hawker Wing, can be found at:

https://www.poole.nhs.uk/patients--visitors/getting-here.aspx


Postal address
Poole Hospital
Longfleet Road
Poole
Dorset
BH15 2JB

Parking

There is a multi-storey car park at the hospital site. There are also a limited number of disabled spaces directly outside Eddie Hawker wing. Other options for parking are on Bird’s Hill Road (free for 2 hours) or Bournemouth Road (parking meter) both of which are a 5-10 minute walk from the Eddie Hawker wing.