1. The ENROLL-HD Study
We are participating in the ENROLL-HD study. This is a global observational study, collecting clinical data to help better understand Huntington's Disease. It will monitor how the disease appears and changes over time in different people. The study is open to people who either have HD or are at-risk.
The ENROLL-HD study clinics are currently run on Tuesday afternoons at the Clinical Research Facility (O-Floor) of teh Royal Hallamshire Hospital.
Families who would like to participate in ENROLL can also be seen at the OPD2, Northern General Hospital in Sheffield and at the District General Hospitals in Grimsby, Chesterfield, and Scunthorpe. We are currently setting up clinics at the District General Hospitals in Barnsley, Doncaster, Bassetlaw, and Rotherham.
3. Juvenile Huntington’s Disease
Oliver Quarrell is the lead facilitator for juvenile Huntington’s Disease
within the Euro-HD project. He also has a research interest genetic test
results which are just in the abnormal range.
2. Clinical Drug Trials
We are actively recruiting participants for Amaryllis-HD (Pfizer) trial. Everyone who attends our Genetics and Research clinics will be screened for eligibility to take part in the pharmaceutical trials. You will be informed accordingly as more trials become available.