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I Jornada sobre EH en Ronda, Málaga, Andalucía, España.

PROGRAMA

I Jornadas sobre la Enfermedad de Huntington
Titulo: EH: La enfermedad el Enfermo y la Familia

I Bloque: La Enfermedad:
  1. Bosquejo Histórico de la EH Dr. Don Carlos Lebrún. Epidemiólogo del AGS Serranía de Málaga
  2. Diagnóstico Clínico de la EH Dra. Doña Lucia García Neuróloga del AGS Serranía de Málaga 
II Bloque II El Enfermo:
  1. Diagnóstico Genético: Aspectos y Normas Éticas Dr. Don Francisco Javier Mérida de la Torre. Jefe de Laboratorio del AGS Serranía de Málaga.
  2. Pronóstico y expectativas terapéuticas Dra. Doña Antonia Ramos, Jefe de Genética, Hospital Virgen del Camino, Pamplona. POR CONFIRMAR
  3. Grupo Europeo de Huntington. Asunción Martínez. Coordinadora local del Euro-HD Network, Madrid.
III Bloque: La familia:
  1. Aspectos Psicosociales.
    Doña Ana Navarrete Franco Trabajadora Social del AGS Serranía de Málaga.
  2. Cuidados.
    Doña Inmaculada Pérez Pardo. Enfermera de Familia del AGS Serranía de Málaga
  3. Presentación de la iniciativa de la Asociación.Testimonios de familiares.
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