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| The Project - Constitution - Article 1 |
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Name, Mission and Principles 1.1. Name. This network
shall be known as the European Huntington’s Disease Network and
referred to in this Constitution and By-laws as “EHDN”. 1.2. Mission.
EHDN aims to advance knowledge of Huntington’s disease by
supporting scientific and clinical efforts to develop and test
therapeutic interventions that will improve the quality of life of
people with Huntington's disease. 1.3. Principles. EHDN is committed to the principles of - open and full scientific communication,
- broad sharing of scientific data,
- collaborative planning and implementation of scientific projects and clinical studies,
- compliance with applicable good research practices in all scientific projects and clinical studies
- peer review,
- prompt publication of all valid results of scientific enquiry,
- full and open disclosure of potential conflicts-of-interest,
- democratic governance of its organization and activities,
- working with other professional organizations, government and industry sponsors, and lay organizations, and
- recognition and protection of the interests of people with Huntington's disease and their families.
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