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Euro Huntington's disease network [logo]
The Project - Constitution - Article 5 -

EHDN COMMITTEES

5.1.     Committees. The EHDN shall have a standing Scientific and Bioethics Advisory Committee. From time-to-time the Executive Committee may appoint such other committees and task forces to assist it with the oversight of the activities of EHDN with such mandates and responsibilities as the Executive Committee may determine.

5.2. Scientific and Bioethics Advisory Committee.

  5.2.1.     Responsibilities. The Scientific and Bioethics Advisory Committee shall facilitate Huntington’s disease research in Europe by acting as a source of scientific and bioethical knowledge and advice to members of the EHDN network. As such the Scientific and Bioethics Advisory Committee may consider and provide recommendations to members and the Executive Committee concerning:

     5.2.1.1. applications for access to EHDN resources including data or biomaterials,

  5.2.1.2. applications for EHDN endorsement of non-clinical or clinical projects, and

  5.2.1.3. such other scientific questions as members may raise.

  5.2.2.     Members; Election. The Scientific and Bioethics Advisory Committee shall consist of twelve elected regular and associated members intended to reflect both basic scientists and clinicians and to include a broad representation of the research interests of EHDN. The members of the Scientific and Bioethics Advisory Committee shall be divided into four, as nearly equal as possible, classes numbered 1, 2 3 and 4. Members of classes 1 and 2 shall be elected together, and members of classes 3 and 4 shall be elected together at alternating Plenary Meetings. Members of classes 1 and 3 shall begin their terms immediately upon election at a Plenary meeting and members of classes 2 and 4 shall begin their terms upon the first anniversary of the Plenary Meeting at which they were elected. The provisions of sections 4.2 and 4.4 shall apply, mutatis mutandi, to their election to the Scientific and Bioethics Advisory Committee. Members of the Scientific and Bioethics Advisory Committee may not be re-­elected for consecutive terms, but may be re-elected if the terms are not consecutive.

  5.2.3. Chair; Procedures. Each year upon new members commencing service on the Scientific and Bioethics Advisory Committee, the members of the committee shall select from among their number a person to be the chair. The members of the Scientific and Bioethics Advisory Committee may, from time-to-time, adopt such procedures for the holding of meetings and the conduct of its activities as they consider useful or necessary.