Steering:

G. Bernhard Landwehrmeyer, Prof. MD Neurologist, Executive Committee, Chair, Principal Investigator Universitätsklinik Ulm, Neurologie Postal address:   Oberer Eselsberg 45/1 89081 Ulm Deutschland phone:   +49 731 50063100 fax:   +49 731 50063082 e-mail:

Office:

Sonja Adam Office- and Projectmanager, Central Coordination Universitätsklinik Ulm, Abteilung Neurologie Postal address:   Oberer Eselsberg 45/1 89081 Ulm Deutschland phone:   +49 731 50063107 fax:   +49 731 50063082 e-mail:

Heike Brun Secretary, Central Coordination Universitätsklinik Ulm, Neurologie Postal address:   Oberer Eselsberg 45/1 89081 Ulm Deutschland phone:   +49 731 50063101 fax:   +49 731 50063082 e-mail:

Administration:

Jamie Levey Chief Operating Officer, Central Coordination Postal address:   17, rue Monge 75005 Paris France phone:   +33 6 82557601 fax:   +1 631 792 1218 e-mail:

REGISTRY Coordination:

Olivia Handley, PhD Registry Project Manager, REGISTRY Steering Committee University College of London, Institute of Neurology, Queen Square Postal address:   Box 104, Institute of Neurology WC1N 3BG London U.K. phone:   +44 20 7692 2615 fax:   +44 20 7611 0129 e-mail:   homepage:   www.ion.ucl.ac.uk

Clinical Operations Manager:

Tim McLean Clinical Operation Manager, Central Coordination Postal address:   PO Box 13820 EH45 6AD West Linton, Peeblesshire U.K. phone:   +44 7738 433165 e-mail:

Project Management:

Dr. Michael Orth Co-Investigator, Coordination DE AT CH Uniklinik Ulm, Neurologie Postal address:   Oberer Eselsberg 45/1 89081 Ulm Deutschland phone:   +49 731 50063095 fax:   +49 731 50063082 e-mail:

Monitoring:

Adrien Come Central Coordination Lead Monitor Postal address:   9 impasse de Charaintru 91420 Morangis France phone:   +33 1 64 48 54 30 e-mail:

REGISTRY Sub-Project Developement /
Working Group Coordinator

	Drs Marleen van Walsem Nordic Coordination Co-Investigator Cognitive Rater Rikshospitalet, Senter for Sjeldne Diagnoser Postal address:   Forskningsveien 3B 0027 Oslo Norge phone:   +47 23075349 fax:   +47 23075350 e-mail:

Support:

Katrin Barth Medical Documentalist, Coordination DE AT CH, Information Technology Universitätsklinikum Ulm, Neurologie Postal address:   Oberer Eselsberg 45/1 89081 Ulm Deutschland phone:   +49 731 50063108 fax:   +49 731 50063082 e-mail: